MySpace http://blog.myspace.com/ebmom http://c1.ac-images.myspacecdn.com/images02/148/m_b891a9e6490042ef9f2879e2d1e6dd3c.jpg http://blog.myspace.com/ebmom en-US Fri, 08 Jan 2010 15:30:15 GMT http://myspace.com blog.myspace.com 60 54436761 http://www.youtube.com/watch?v=-1yJxlO50Ao Tell it like it is Bill!! http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=503374583 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=503374583 Sat, 01 Aug 2009 10:55:00 GMT http://www.youtube.com/watch?v=F0kXxOPw0jc A must see!! http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=503219335 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=503219335 Fri, 31 Jul 2009 11:22:00 GMT http://www.youtube.com/watch?v=v4WAYJBDevw This is for parents of disabled children...If you understand and believe in the law of attraction, this is a MUST see. I always thought Nicky w... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=494610827 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=494610827 Sat, 13 Jun 2009 09:54:00 GMT Send your own ElfYourself eCards http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=450536633 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=450536633 Thu, 20 Nov 2008 14:00:00 GMT Dear Santa*,I've been a good mom all year. I've fed, cleaned and cuddled my children on demand, visited the doctor's office more than my doctor and sold sixty-two cases of candy bars to... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=339222027 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=339222027 Tue, 18 Dec 2007 10:28:00 GMT It's the first official EB Awareness week and EB Patients need your help! We had over 4000 people that signed our petition for the Wound Care Bill, now we need your help in writing to l... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=322414582 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=322414582 Thu, 25 Oct 2007 15:43:00 GMT Here's the new photos of Connor from his professional shoot. Sears gave me the copywrited CD with all the pics (costed me a fortune, but, oh well) so I can post them anywhere I like. I am STILL waitin... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=319229826 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=319229826 Mon, 15 Oct 2007 09:12:00 GMT Hey everyone, I usually NEVER forward this kind of stuff, however, this one is different. Randy Christensen is the brother of one of my BEST friends in Phoenix and he's doing such good work, I would l... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=318378027 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=318378027 Fri, 12 Oct 2007 08:39:00 GMT This is a good one, Nicky even mentioned...awww :-) Camp lets kids escape staresSan Jose Mercury News - CA, USATen-year-old Nicky Zahorcak of Lancaster has a skin disease called epidermolysis bullo... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=283600060 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=283600060 Tue, 03 Jul 2007 14:25:00 GMT Oh boy... I am a proud momma today! Not only Nicky graduated from Elementary School, he finished the school year with the 'Superintendent Honor Roll', which means he got Straight As! Way to go Nicky!!... http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=276660796 http://blogs.myspace.com/index.cfm?fuseaction=blog.view&friendId=54436761&blogId=276660796 Fri, 15 Jun 2007 13:31:00 GMT