Gender: Female
City: (I'm really only 5!!) BEL AIR
State: Maryland
Country: US
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Friday, September 25, 2009
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So I am thinking about trying to start blogging about Rachel again. I kinda got away from it bc I put so much into it before it kinda drained me. If ur still following this email me at riskymd@comcast.net
Thanks.
Mike.
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Monday, February 23, 2009
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Well, for those of you who still check our blog here, Rachel has another MRI scan tomorrow. This one snuck up on us! Well give us some prayers, and we'll keep you updated! MR
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Saturday, November 15, 2008
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Current mood:  blissful
Well Rachel had another good MRI today! whew.... if you could only feel the weigh lifting. It is almost instant. As soon as you get the word that she is OK, weeks of sleepless nights, and worry go right out the window! Thanks to all who pray, and support us, and for those of you who are always there for us. It is always such a big help.... Next one in FEB.... Mike (dad) PS if you reading this for the first time, b/c i linked this from Facebook, check out the main page that will explain why she had an MRI
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Wednesday, October 22, 2008
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Current mood:  sad
Well we got some sad news today. A little boy, named Henry that we met in Clinic a few months ago has relapsed, and his cancer seems to be returning. He was diagnosed with the exact same type of cancer as Rachel. He is 1 year younger than her, and is one year behind her in treatment. He just finished this July, vs. May 07 for Rachel. When we met them, and Henry's father saw Rachel and how well she is doing, he basically cried, b/c he was so happy that Henry might be able to follow her footsteps. I really wanted that to be... I was so happy that we could provide them some hope, and an example that things can work out. Now, obviously we are not out of the woods yet, and we will not get a clean bill of health until 2012, so we are still climbing up the mountain, but she has come so far, and done so well that hearing about Henry has floored me again, and renewed my fears and uncertainties about how this will all go for Rachel. This little boy doesn't deserve this, nor do any children, obviously. but, I feel so horrible ( and I know it isn't my fault) for telling his father, Bryan, to relax, and that Rachel has done so well, that of course Henry will too. I just felt like her progress was a badge of honor that I could wear, and inspire people in the same situation. It has been humbling to say the least. I don't know how Bryan was able to call me, and be so rational, and even worry about what I WAS FEELING? There isn't too much more to say, just pray for him, and for us, and if you can, please visit his web site, and donate if you can. http://henryschallenge.blogspot.com/
Now.. Rachel's next MRI is coming up on 11/12, and obviously my anxiety just went through the roof... Please pray, as always, and thanks for listening.
Mike
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Tuesday, August 12, 2008
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Current mood:  excited
Well Rachel had her 15 Month MRI a few days ago, and she is still clean!!!!! This was a big milestone for her, and us, as the doctors say that making past 1 year increases all of her odds that it wont come back! It has been a really stressful week, as you might imagine, but she got through it, and all is well! We are so relieved. I am sorry that i don't write more often these days, things have been so busy, and like i said previously, i poured so much emotion into this Blog over the past few years, i am just burnt out on it. (Plus i hear that Facebook is totally the new Myspace anyway! :) ) Rachel doesn't have a facebook page, and we will probably just keep it here, unless the whole world moves on, and we are the last ones left! Anyway, thanks for keeping up to date, and for those of you who have been there for us.... thank you as always, we coudn't get by without you.
Mike
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Tuesday, June 17, 2008
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Current mood:  happy
Hey everyone! It's been a while, i thought i would catch everyone up on things. I would be writing more, but these days i find it kind of tiring. I poured so much emotion into this thing while she was getting treated, i kinda burned out on it! But, she is doing quite well! I posted a new album of pics for you to see! We are leaving (all 4 of us, gulp!) on a plane Friday for California! Rachel is gonna get to meet her Great-grandmother, as well as some aunt's/uncles/cousins. It is going to be a little crazy flying for 7 hours with a baby who won't sit still for 7 minutes! We have a 2 hour flight to Atlanta, and then a 2hr. 45 min lay-over and then 5 hours to California. I can't wait though, we are gonna be staying near Laguna beach! I need some sand, and i need it NOW! LOL. Anyway, all is good here, and rachel's next MRI is scheduled for early AUG. We'll keep in touch! thanks for the support!
Mike
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Monday, March 31, 2008
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Current mood:  relaxed
Hey everyone, it’s Mike. I haven’t written in a while, so i thought i would catch up, and let everyone know whats been up. First and foremost, Rachel’s eye surgery went really well! Her eyes are centered, and she is getting more motion everyday. It is gonna take a while to re-train her brain to view things differently than she had, with her eye turned in. We are so happy to see her looking better though. it was a quick procedure, and her doctor was amazing!
So.... Rachel’s next MRI is coming up on 4/14. Time to get the prayer chain a rollin again! We need em! Doctors say that if we make it to a year without reoccurance than her chances of it coming back are significantly decreased; although they won’t use percentages. This is the most difficult time for me personally. The 2 weeks leading up to an MRI. It is hard to describe what it feels like to beg God to spare your daughters life, let alone doing it everyday for the next 4+ years. I am noticing that this has all taken a toll on me a little. I’ve been more tired lately, and I feel like I am not as productive as i once was. this is a kind of mental stress that is hard to describe. i got my first real cold this week, since the 90’s. (except a 24hr bug i caught a few years ago... ugh... that sucked) But i am staying optimistic, and enjoying every minute i spend with Rachel. Right before our eyes she is growing into a wonderful, caring, sweet, understanding, considerate little girl, and she makes each day fun in some way. She is always saying things that just floor us, and she is reading very well too! She has also begun to negotiate with us about things that she wants, and things she wants to do. Brandy thinks she is gonna be a lawyer, and if you heard some of her [well thought out] arguements to things, you might agree! She is also so amazing with Dylan. She takes care of him, and puts him before herself more than i could ask for in a 4yr old. Dylan is doing great! All 800lbs of him! Funny though, he doesn’t look fat, he is just BIG. He looks like a middle linebacker.... well at least i WANT him to look like one! :-) Anyway, i posted some new pictures of everyone in her album under "Easter 2008". check em out if you got some time!
Also, read the BLOG that came before this one, about our Relay for Life event. We are REALLY trying to raise money, so please pass it around, and thanks for your donations!
I will check back in after Rachel’s MRI. thanks for listening!
Mike
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Wednesday, March 26, 2008
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Current mood:  excited
Category: Life
Hi Everyone! Our family is taking part in the "Relay for Life" on May 9th. This is an American Cancer Society event to honor cancer survivors and those who have lost their battle. Its an all-night walk, from 7pm-7am, members from the team take turns walking throughout the night, so that someone representing the team is always walking!!
Mike, Rachel, my Mom, some of our friends, and I are all taking part in this event, and if anyone else is interested in joining please let me know!! Because we’ve never done this before, we’ve signed up through my work, so our team is "Franklin Square Hospital" at the Essex Relay for Life. Next year I would like to start our own team, in celebration of my beautiful and strong little girl!!!
So now we need sponsors!!! As a family we’d like to raise at least $500. $1000 would be even better!! So please help us! Every bit adds up, so please help us out and donate on our behalf!!!! Since we each have our own page, its completely up to you whether you’d like to donate to Mike, Rachel, or me..... Or all three!!!! :O)
The address to Brandy’s page is: http://main.acsevents.org/site/TR/RelayForLife/RelayForLifeSouthAtlanticDivision ?pg=personal&fr_id=9290&fr_id=9290&px=4922487
Rachel’s page is : http://main.acsevents.org/site/TR/RelayForLife/RelayForLifeSouthAtlanticDivision ?pg=personal&fr_id=9290&fr_id=9290&px=4939895
Mike’s (although he hasnt personalized his page yet, it still works to donate to it!): http://main.acsevents.org/site/TR/RelayForLife/RelayForLifeSouthAtlanticDivision ?pg=personal&fr_id=9290&fr_id=9290&px=4939896
Please let me know if you have any questions!!! Thanks for your support!!!
Love, Brandy
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Saturday, February 16, 2008
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Current mood:  sad
We have had a very upsetting week. We found out on Wednesday that one of Rachel's friends from Hopkins has had a relapse. Her name is Mackenzie, and she has the same type of brain tumor that Rachel did. She's older, and had a different treatment plan than Rachel did (they treat younger kids differently than older ones). We met her and her mother Sue shortly after Rachel's brain surgery in '06, and she had quite a bit of insight for us, about the things Mackenzie experienced after surgery and what chemo was like for her and things like that. Both girls had the "posterior fossa syndrome" in which they had to relearn to talk, walk, etc. after their surgeries. Mackenzie is such a sweet kid, and her and Rachel have crossed paths a number of times at the hospital.
They doctors have confirmed that her cancer is back, she has a regrowth, and was re-admitted to the hospital. She's had more brain surgery and they're discussing treatment options. They're saying that since some of the cancer cells survived the previous chemo and grew back, that she's immune to that chemo now and they need to figure out another plan for her now, with different drugs and higher doses and things like that. Its so hard on so many levels to read about what's happening with them. Its so so unfair that this wonderful sweet little girl has to once again go through this, the fight that she has already fought once and should absolutely not have to fight it again!!!! I feel so much sadness for their family right now, about how hard this must be to start all over again.
Their family is so strong, and they WILL fight this and beat it FOR GOOD this time.....
I ask all of you to please think of her, to please pray for her as she begins this battle again. If you would like to keep up with Mackenzie's progress, you can check her Caringbridge page, which her mom updates frequently.
http://www.caringbridge.org/visit/mackenziestuck
Thanks for listening... Brandy
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Thursday, January 10, 2008
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Current mood:  ecstatic
Well on Tuesday Rachel had her 9 month MRI and (drumroll please) SHE IS STILL CLEAN!!!!!!!! YAY! We were, as always, so nervous going into this scan, and as i said before we must have them regularly until about 2012, before they say 'remission', BUT she is doing so great, and she is so happy, and enjoying life that her spirit is quite contagious! Her next one is scheduled for 4/18, and on 5/18 it will mark her 1 year anniversary from when her treatment ended. this will be a MAJOR milestone for her, as the doctors say after the first year her chances of reoccurance significantly decrease, though they don't like to talk 'percentages'. Thank you to all who are here for us when we need you, and who pray. It has definetly been working / helping, so keep it up!  Mike
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