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jeudi, décembre 18, 2008
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Humeur actuelle :  têtu
MOnday this week i had the tube out of my stomach pulled out. My syrum sickness seems to be slowly fadig away. I haven t had any crazy temps and the pain is slowly going down. Im slowly now working my body off the fentynol and oxy that i have been taking for months now. I really have an understanding for those people who have to go through rehad cause drug addictions its absolutely no fun having withdrawl. But Im feeling way better and am starting to get use to everything with the new organ. Im hating the water weight from the steriods and the weight gain.. although i def wouldnt call myself fat going from 80 lbs to 120 makes me feel fat. Im waiting to look down at my stomach and see the scars disappear.. knowing that wont happen anytime soon i guess the huge scars are pretty stellar. I ventured out of my house a few times. I dont have much energy still went Christmas shopping for an hour or two and was completely exhausted. Hopefully ill be up for some fun by new years.. if theres anything going on around this crap filled town. Love you all! doing a million x better hopefully i see some of you over the holidays 
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mardi, novembre 18, 2008
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Humeur actuelle :  exaspéré
So i spent another week in the hospital.. but just one week this time. They pumped me full of antibiotics and basically told me that i was in pain and sick and had a temp of 105 cause of this shit called syrum sickness. I guess cause i had this huge allergic reation to one of the meds that they HAD to give me to keep the organ i Get this shit. Dont worry though, like all the other shit ive had it seems to be extremely rare. Last time theyve even seen it was like 4 years ago so they have to go back and look at cases to see what they are going to do. But basically its till the antibodies in my body go away from these meds. They are hoping it has only lasted this past month and everything is going to be better from here on out. Getting blood taken twice a week to make sure everything is working and taking a meal full of pills everyday.. like 50 pills.. Haha, but have been home for two whole days now.. its a record. Ill be back to my old self sooner than expected. and back to my ill graduate by the time im 30 plan.. haha. damn OHIO STATE ILL BE HOME SOON>> I MISS YOU
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vendredi, novembre 07, 2008
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Humeur actuelle :EXTREMELY TIRED
MORE LIKE A 13 YEAR OLD GIRL FROM PITTSBURG THREW A BOMB DOWN AND BLEW AWAY SOME STAIRS FOR ME TO FINALLY CLIMB OUT. mY LAST POST SAID THAT I WAS GOING IN FOR SURGERY SO THAT I CAN GET MY STOMACH FIXED AND I COULD FINALLY EAT LIKE A NORMAL PERSON AGAIN. wELL SO THE DAY ARRIVED FOR ME TO GO IN AND I GET A CALL, OF COURSE ITS THE DOCTORS NURSE TELLING ME THAT HE IS IN AN EMERGENCY SURGERY AND THAT MY SURGERY WILL BE DELAYED UNTIL LATER THAT DAY. wITH IN THE TIME MY SURGERY WAS DELAYED AN OFFER FOR ANOTHER OTGAN FOR ME WAS MADE, FROM A 13YEAR OLD GIRL, SO THERE WOULD BE NO PREOBLEMS WITH FITTING THE ORGAN IN OR IF IT WAS HEALTHY OR NOT. sO I OPTED TO WAIT FOR THE ORGAN TO BE PROCURED AND SENT TO CLEVELAND CLINIC. i WENT IN FOR SURGERY AND EVERYTHING TOOK CORRECTLY. tHEY SENT ME HOME ON HALLOWEEN LAST WEEK, GOT SICK THE DAY AFTER WITH A KIDNEY INFECTION, SPENT THE REMAINDER OF THIS WEEK IN THE HOSPITAL ON MEDS AND WS SENT HOME AGAIN TODAY. i AM EATING NORMAL FOODS AGAIN AND THE ORGAN SEEMS TO BE WORKING, I HAVENT HAD TO TAKE SHOTS OR ANYTHING IN TWO WEEKS. sO AS OF RIGHT NOW I FEEL EXTREMEMLY TIRED BECAUSE I HAVE REALLY LOW BLOOD COUNT, I GET NASUEATED SOMETIMES, i CANT EAT LIKE I USE TO I GET FULL REAL FAST. MY LIPS GO NUMB AND WELL CERTAIN LITTLE THINGS IVE BEEN NOTICING THAT ARE DIFFERENT. bUT i GUESS I WILL GET USE TO. i TAKE ABOUT 50 PILLS A DAY AND I STILL HAVE MY STOMACH TUBE AND IV IN MY CHEST. hOPEFULLY BY MY BIRTHDAY ALL THOSE THINGS WILL BE REMOVED AND MORE THINGS WILL BE BETTER THAN NORMAL, CAUSE I KNOW THEY WILL NEVER BE NORMAL AGAIN. sO NOW THAT I FIGURE IVE ATLEAST BEEN BLOWN OUTTA THE HOLE FOR NOW IM TRYING TO WORK MY FASTEST TO FILL IT IN SO I CANT FALL BACK INTO IT.. HELL MAYBE THINGS WILL EVEN GO UP FROM HERE. iLL GET TO SEE THE FIRST HILL IN MY LIFE (AND FROM THE TOP) 
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vendredi, octobre 17, 2008
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Humeur actuelle :waiting
Well I finally talked to the doctor and found out tha nothing has changed and that we will now go in for surgery (Could of told ya that a month ago) So I am going in for surgery on monday to fix the blockage.I should be eating like a normal person again about a week after surgery.. hopefully sooner.. and then I will be back to where i was before waiting for the transplant. Ill let you guys knwo how the surgery went. love ya
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mardi, septembre 30, 2008
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Humeur actuelle :HURT PISSED DEPRESSED
HEY GUYS SO I DONT EXACTLY REMEMBER WHAT MY LAST UPDATE WAS BUT IVE BEEN IN AND OUT OF THE HOSPITAL FOR THE PAST 2 MONTHS BASICALLY. THE BOWEL THAT THEY THOUGHT WAS FIXED APPARENTLY ISNT. wHEN THEY LET ME GO HOME FROM THE HOSPITAL AFTER THE TRANSPANT/UNPLANT THEY HAD ME ON A LIQUID DIET AND FIGURED THAT IT WOULD SLOWLY STRETCH AND GO BACK TO NORMAL BUT IT DIDNT SO I ENDED UP GOING BACK INTO THE HOSPITAL WHEN I WAS IN SO MUCH PAIN, THEY PUT A NOSE TUBE BACK IN AND SUCKED EVERYTHING OUT OF MY STOMACH SPENT A FEW DAYS IN THE HOSPITAL AND WAS FINALLY SENT HOME WITH A TUBE IN MY NOSE. WELL I GOT SICK OF THE WHOLE PAIN IN MY NOSE AND THROAT FROM IT AND REMOVED IT MYSELF. ENDED UP GOING INTO KETOACIDOSIS A FEW DAYS LATER AND WAS IN PAIN AGAIN SO WENT BACK INTO THE HOSPITAL THEY CORRECTED THE ACIDOSIS AND PUT ME ON MAJOR PAIN MEDS TO HEP WITH THE PAIN FROM THE STOMACH UNTIL THEY COULD GET ME IN TO PUT A STINT IN AND A TUBE IN MY STOMACH. SO A WEEK AGO THEY WENT TO PUT THE STINT IN BUT MY STOMACH WAS SO HUGE AND SWOLLEN IT PUSHED ALL MY INTESTINES INTO A BALL AND THEY COULDNT EVEN FIT A WIRE THROUGH THE CLOSED PART OF THE BOWEL SO THEY PUNCHED A HOLE INTO MY STOMACH SO I NOW HAVE A TUBE COMING OUT OF MY STOMACH TO RELEASE WHATEVER GOES INTO MY STOMACH. i ALSO HAVE AN IV COMING OUT OF THE CENTER OF MY CHEST SO I CAN HAVE TPN OR FOOD PUMPED INTO MY VEINS 24/7. tHEY LET ME COME HOME ON SUNDAY. i WILL BE GOING BACK TOMORROW MORNING TO GET ANOTHER CATSCAN DONE TO SEE WHETHER MY INSIDES HAVE BECOME LESS SWOLLEN AND TO SEE WHERE I AM WITH MY NUTRITION. HOPEFULLY THINGS WILL BE GOOD ENOUGH TO GET A STINT PUT IN FINALLY. iF NOT I WILL PROBABLY BE GOING BACK IN SOON FOR SURGERY AGAIN. tHEY WILL MOST LIKELY CUT ME OPEN AGAIN AND PUT A TUBE THAT GOES IN SO I WILL BE ABLE TO EAT AGAIN. bUT FOR NOW I WILL BE AT HOME WITH THE TUBE IN MY STOMACH AND THE NURSES COMING EVERYDAY TO HELP CHANGE MY IV FOOD BAG. WOW.. EXCITINGHUH. WELL THATS THE UPDATE FOR NOW.. IF I FIND OUT ANYTHING ELSE AND DONT END UP BACK INTO THE HOSPITAL SOON YOULL HEAR FROM ME AGAIN ON HERE SOON. aND WELL JUST WANTED TO SAY THANK YOU TO THE PEOPLE WHO HAVE REALLY BEEN THERE FOR THE THE PAST FEW WEEKS, i HAVE REALLY NEEDED IT. THANK YOU SOOO MUCH I LOVE YOU GUYS SOO MUCH. 
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mardi, septembre 09, 2008
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Humeur actuelle :in pain
So I was called into the hospital last month on the 18th for surgery again. This time I actually had a good chance to go in for surgery and ended up going into the OR for the operation. Everything looked good after the surgery for about 24-30 hours untill blood flow to one side of the organ wasnyt working. So I went back into the OR and they had to remove the organ because it wasnt working. They figure that something was wrong with the organs blood flow because the person it came from was on life support for about a week, my body did not reject it. So then after both major surgeries I had some problems and was puking up everything after they had removed the tube from my nose/stomach. It turned out that my digestive system would not work and I was looking at another surgery to try and fix the problem. But thankfully my body decided to work and well they put me on a liquid diet. I finally got out of the hospital last thursday morning and am doing much better than I was in the hospital. I now have a scar straight down the center of my stomach and well feel worse than i did before. Im still having tons of pain and am trying to deal with my stomach as best as i can. Still on a liquid diet for a while till my stomach can handle everything again. Hopefully I will be back to how i was in less than a month and feeling better. The surgeons are planning to try another surgery in about 6 months. I have to wait to let all the scar tissue go away from the surgeries I just had, it will make it easier for the transplant. Im kind of glad it wont be for a while, it will give me some time to get back to how i was and try to stress out. SO for now there wont be too many updates on my condition. You should start hearing more from me about surgery again in around 6 months. Thank you all for your support I dont know what i would do with out all of you. THANKS 
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dimanche, août 10, 2008
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Humeur actuelle :DIZZY
SO last week my body decided to flip out again. spent a few days in icu again. back out now.. just full of fucking fluids. my body apparently is unhuman and can be exremely acidic and well i just dont die. haha. apparently the normal pH of a human is liek 7.4 water is 7 like totally neutral and well Heather.. 5.7??? dead. haha nope not me.. im still kicking it, got pretty damn sick dont remember the er, but got back on my feet withing two days was out of the hospital in 4. Damn i am amazing. Now im going to go back to waitng for that organ. my life is so fucking sweet.. dont you wish u were as cool as me
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lundi, août 04, 2008
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Humeur actuelle :  dégouté
So i said i wasnt going to post till i was going to the hospital or had surgery.. whatever, cant remember what i posted last time, but i decided to post anyways. I had a quite adventurous few weeks, I headed out to the cabin in Michigan for a week at theend of July, fun but the little i did took everything out of me and i spent the next week on the couch not being able to consume food.. or if i tried it came back up so i went back down to about 100-105 pounds. Had to call from the coordinator at the clinic so I was admited for my transplant earlier this week.. spent like 15 hours there then it didnt work out and they sent me home. Then again today i went in again only for 5 hours this time and sent me home again. but damn I got this bitch nurse today and i mean i have had a million blood draws and iv's stuck in my arm this crack whore totally fucked my arm up. haha. half of my arm is black and blue the half swollen.. what the fuck.. but anyways doctor said im first in line locally now so the next good one around here is mine. Said should happen before summers gone. :)
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vendredi, juillet 18, 2008
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The past few weeks ive gotten a couple of calls. I am no longer going to post when i am called. The next post should be when i actually go into the hospital or return from sugery... hopefully the time between this post and the next isnt long, im getting sick of waiting.
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mercredi, juillet 02, 2008
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so nobody took me up on my bet.. good thing u didnt cause i didnt go in for surgery. so im back to waiting for another call. i will keep you posted.
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