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Betsy Mullen



Last Updated: 1/2/2010

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Thursday, January 07, 2010 

Category: News and Politics


http://www.thepetitionsite.com/takeaction/63378608...
Florida Panthers Could Disappear Forever Without Your Help Today, approximately 120 Florida panthers are left in the world. These majestic animals are threatened on all sides by rapid habitat destruction from human encroachment and development.
Thursday, January 07, 2010 

Category: News and Politics
Thursday, January 07, 2010 
Thursday, January 07, 2010 

Category: News and Politics


http://www.serve.gov/mlkday.asp
Serve.gov
Shared via AddThis
On January, 18, 2010, people of all ages and backgrounds will come together to improve lives, bridge social barriers, and to move our nation closer to the “Beloved Community” that Dr. King envisioned. Dr. Martin Luther King devoted his life’s work to causes of equality and social justice. He taught that through nonviolence and service...
Wednesday, January 06, 2010 

Category: News and Politics


http://marshahuntdocumentary.blogspot.com/2010/01/...
I think you'll find this site interesting...
Monday, January 04, 2010 

Category: Life

...“One should forgive, under any injury.



Forgiveness is holiness; by forgiveness the universe is held together.



Forgiveness is the might of the mighty; forgiveness is sacrifice; forgiveness is quiet of mind.



Forgiveness and gentleness are the qualities of the self-possessed. They represent eternal virtue."...





~ The Mahabharata as quoted by Paramahansa Yogananda in "The Second Coming of Christ: The Resurrection of the Christ Within You"




Friday, January 01, 2010 

Category: Life


Recientemente me enteré del fallecimiento a principios de este mes de un amigo muy especial y ser humano que salvó la vida de todo el mundo e inspiró a muchos la suerte de conocerlo, Chris Pablo.

El siguiente diciendo colgado de mi polo IV, mientras yo estaba en el hospital recuperándose de una mastectomía y reconstrucción de mama en octubre de 1992.

"Fuera de las dificultades, crecer milagros".

~ Autor Desconocido

Estas palabras han continuado celebrando verdad a mí y me inspira desde entonces. Espero que usted encontrará la verdad y la inspiración en la vida de Chris Pablo y en sus palabras a continuación.


El siguiente es un discurso escrito por un querido amigo y colega, Chris Pablo, una inspiración increíble persona y hacer un impacto significativo en nuestro mundo.

Por
Chris Pablo
Makiki Iglesia Cristiana
8 de julio 2000

... Para que las obras de Dios podría ser revelada en ti. . .

Fui bendecido con leucemia hace 4 años, pero yo no lo sabía en ese momento.

Sí, es cierto, ya he dicho, fue "bendecido" con la leucemia

No suele mirar a la adversidad o nada en peligro la vida como el cáncer o la leucemia como una "bendición".

Probablemente usted está pensando, ¿cómo puede alguien ser "bendecidos" con una enfermedad mortal? Usted sabe que la leucemia puede matar. Lo hace a menudo. Empiezo cada mañana con una oración. En mi tiempo de oración, recuerdo que los pacientes con leucemia compañeros que no sobrevivieron. Soy bendecido, y yo contra todos los pronósticos!

Después de mi diagnóstico fue de conocimiento público, a menudo me preguntó, "¿Cómo conseguiste la leucemia"? Le dije que no importa cómo lo conseguí, porque eso era lo de ayer. Lo importante es por qué lo tengo porque es el día de mañana.

Hace unos años, finalmente averiguar por qué. El capítulo 9 del evangelio de Juan nos habla de la parábola del ciego cuya vista fue restaurada después de lavar el lodo que Jesús se frotó en los ojos. Sus apóstoles tenían curiosidad acerca de por qué el hombre había sido maldecido con esta aflicción. Le preguntaron: "¿Fue su pecado o el pecado de sus padres que le llevó a ser nacido ciego?" Jesús le respondió: "no era ni su pecado, ni los pecados de sus padres que lo hicieron a ciegas". "Él se hizo ciego para que las obras de Dios se manifiesten en él".

De la misma manera, se me dio la leucemia para que pudiera ver la maravilla de las obras de Dios, a los milagros de los testigos. Así que, que yo podría aprender lecciones valiosas en mi viaje con leucemia y más allá.

El viaje no comenzó con una "explosión", sino con un gemido hace 6 años. Durante la cena me mordí la lengua, cuando me fui a la cama de la hemorragia no había cesado. Al día siguiente me desperté en una almohada empapada en sangre. Me fui a la sala de emergencia para puntos de sutura y una prueba de sangre que confirmó que mi conteo de glóbulos blancos era demasiado alto y mi recuento de plaquetas es demasiado bajo. Es por eso que siguió a sangrar en el día siguiente.

Unas pocas pruebas más y un par de semanas más tarde, se confirmó el diagnóstico: la leucemia mielógena crónica. Ese es el tipo de leucemia en el mal funcionamiento de la médula ósea. Un defecto cromosómica conocida como cromosoma Filadelfia hace que su médula ósea para producir más glóbulos blancos que usted necesita. Para empeorar las cosas, las células blancas de la sangre se liberan en el torrente sanguíneo antes de que maduren lo que son incapaces de hacer el trabajo de combatir las infecciones. Su sistema inmunológico está comprometido. Una simple infección puede hacer que usted realmente enfermo o peor, podría matar!

Por cierto, acaba de descubrir que tenía leucemia era como una sentencia de muerte. Vas a morir pronto-si no ahora, tal vez en 3-5 años a lo sumo después de sufrir una muerte lenta y agónica.

Sabes, cuando te topas con algo duro. Usted realmente necesita ayuda. Lo que necesita es esperanza. Esperamos que lo que tienes es un error, un error diagnóstico. Esperanza de que habrá una cura. Esperanza de que habrá un milagro.

Así que, ayúdame a salir ahora.

Cuando las cosas se ponen difíciles, ¿dónde ir duro?

Compras?

No!

Cuando las cosas se ponen difíciles, los duros se GOLF!

Y eso es justo lo que hice. Y, me alegro de que lo hice porque, cuando fui al campo de golf Koolau 2 meses después de que fue diagnosticado con leucemia, encontré la esperanza. Encontré la esperanza en un mensajero en el driving range.

Nunca sabré por qué me vi obligado a recoger una pelota que estaba a punto de llegar.

¿Por qué mantenerlo?

¿Cuál fue el mensaje en esta pelota de golf?

"La leucemia Beat"!

Eso es, dijo, "vencer la leucemia". Encontré la esperanza en el más inverosímil de los lugares-en el driving range. Creo que esto fue nada menos que un milagro.

Pero, ese no fue el final de mi historia. Fue el comienzo. Me enteré de la esperanza. No he encontrado una cura.

Usted sabe que hay "buenas noticias" acerca de la leucemia. A diferencia de la mayoría de los cánceres, no existe una cura. Sin embargo, la mala noticia es que "hay que encontrarlo!" Tienes que encontrar una correspondencia de donantes de médula ósea. Y, por eso es muy difícil. Es como encontrar una aguja en un pajar.

(Por eso Roy Yonashiro Hawaii y el Registro de Donantes de Médula Ósea está aquí esta mañana para ayudarle a convertirse en una vida de ahorro de los donantes.)

Miembros de la familia son la mejor posibilidad. Mi hermano no era sólo una coincidencia. Así que, mis amigos iniciado donante de médula ósea unidades a partir de los primeros meses de 1996. La mayoría de las unidades eran pequeñas y no muy concurrido. Después del primer mes, ninguno de los solicitantes de registro emparejado en mí. Me ha decepcionado y se puso a la desesperación.

Luego, el Viernes Santo de 1997, un 2-años de edad fue diagnosticado con leucemia aguda. Afortunadamente, su gran familia y de recursos está dispuesto a todo lo posible para reclutar donantes. Tenían que encontrar un donante rápido, ya que su médico le dio sólo unos pocos meses de vida.

Me uní a la familia Alana Dung, en cada unidad de donantes. La respuesta fue increíble. En 2 meses escasos más de 32.000 personas en Hawai, se presentó y extendió sus brazos para que una muestra de su sangre podría ser una prueba para ver si sería un partido, dando esperanza a todos los que estaban en necesidad de un trasplante de médula ósea . Yo no ahora, entonces, que mi donante fue motivada por la situación de Alana.

¿Cuál es la lección en esto?

Se remonta a tener esperanza. Tienes que confiar en que siempre habrá alguien por ahí que coinciden con la médula ósea. Su oportunidad de su vida podría ser en el extranjero que se presenta en una unidad de donantes de médula ósea. [Al igual que lo que está pasando en el exterior.]

He aprendido una valiosa lección de estas unidades de reclutamiento de donantes. Especialmente a aquellos que se me acercó y confiadamente proclamó: "Yo voy a ser un partido para usted!" La lección es ésta: cuando está la vida depende de ello, las cuestiones a todos, incluso los extranjeros. Esta es una lección que ha significado hoy en día-cada vida es preciosa y valiosa. Esta lección formas mi actitud acerca de la gente y cómo tratarlos.

Puedo decirle que pensaba que sólo encontrar una coincidencia no era suficiente. Para sobrevivir a un trasplante de toma otro milagro. Las cartas están en contra de usted! Ambos Emley Brandon y Alana Dung encontrado coincidencias perfectas y le dio a sus familias un año más para disfrutar de sus preciosos hijos. Sin embargo, los trasplantes fallan a menudo. De hecho, las estadísticas muestran que sólo el 40% de los pacientes con trasplantes de médula ósea sobrevivir. Para decirlo de otra manera, 6 de cada 10 pacientes sometidos a trasplante de médula ósea a morir! Creo que las estadísticas son optimistas alta, mi experiencia me lleva a creer que el número de víctimas es trágicamente alto.

En las palabras del tío de Alana, el Dr. Alvin Chung, realmente "tiene un milagro" para encontrar un donante y sobrevivir al trasplante.

También tiene fe y confianza-la creencia de que puede confiar en Dios con su vida.

Se trata también de la rendición.

Permítanme compartir un momento de descubrimiento.

En octubre de 1996, un mes antes de mi transplante, me pregunté:

¿Qué miedo?

Morir y dejar a mi esposa e hijos.

Cuya vida es esta?

Minas, por supuesto.

¿Quién te la dio?

Dios lo hizo.

Me di cuenta de que esta vida no me pertenece. Que pertenecía a Dios. Se la dio a mí. Así que me la entregaron.

Le dije:

"Señor, llévame a casa, o que me quede, pero si lo hace, déjame ser tu instrumento. Le mí ser tu mensajero. Use me".

A partir de ese momento, yo ya no tenía miedo porque me había entregado, y mi vida estaba ahora en manos de Dios.

Por lo tanto, estoy aquí hoy, en cumplimiento de mi oración y mi pacto.

Hablando de los instrumentos, la primera vez que mi donante se negó elogios. Con humildad dijo: "Yo sólo soy un mensajero. Soy un vaso de Dios que esta médula a Chris".

Él también lo sabe y ha vivido el mensaje de la parábola del ciego. No, no, Roger Ariola es ciego. Pero, él es un doble amputado. Perdió ambas piernas hace 30 años mientras se hace una buena acción. El buen samaritano se detuvo a ayudar a un conductor que quedó varado en Salt Lake Boulevard. Mientras ayudaba a un conductor ebrio lo había atropellado y casi lo mató. Le costó a Roger ambas piernas. Ese fue su aflicción. Unos 30 años después, finalmente se encontró "las obras de Dios" en lo que hace bien. Al ver la difícil situación de Alana Dung, Roger viajó a Honolulu de Kauai a inscribirse para ser donante de médula ósea.Unos meses más tarde fue de nuevo a prueba y se confirmó. Fue un partido perfecto para mí! Dar la médula para salvar su vida era "no es gran cosa" a Roger. Él cree, como yo, que una vela no pierde nada de su luz al encender otra vela.

Roger y yo hemos convertido en buenos amigos, nos comunicamos con frecuencia por teléfono y ver a menudo. Lo mejor de todo, trabajamos en conjunto para reclutar más donantes de médula ósea. Él es realmente mi "hermano de sangre".

Mi reto no ha terminado. El riesgo de recaída, como lo Alana Dung y Brandon Emley experiencia, todavía es muy real para mí. Me siguen enfrentándose a problemas médicos como resultado del trasplante.

La experiencia de la leucemia en los últimos 6 años ha enseñado a mi familia y para mí estas otras lecciones:

• Apreciar la belleza de cada día, incluso cuando llueve. Un viejo proverbio árabe dice: "todos sol sin lluvia hace un desierto." Piense en la lluvia como la pintura verde. No hay arco iris sin lluvia.

• No existe fuerza en el amor de la familia, amigos y extraños. A veces, especialmente los extranjeros.

• Cree en el poder de la oración.

• La adversidad nos permite ver las obras de Dios en nosotros.

• Aceptar los desafíos de la vida. Lo tienes en ti para hacer lo que sea necesario para superarla. Aceptar y afrontar con gracia y dignidad. Antes de irme de mi trasplante, un paciente con leucemia compañeros me aseguró-Dios no te da más de lo que puede manejar. Con su ayuda se puede manejar cualquier cosa. Nunca estás solo cuando está en sus manos.

Me gustaría concluir mi intervención con este poema:

Caminé un kilómetro y medio de placer y Ella hablaba todo el camino, pero me dejó sin enterarse de todo lo que tenía que decir.

Luego, entré a una milla de dolor y de una palabra que no dijo, pero, ¡las cosas que aprendí de ella, cuando el dolor me acompañó.


Bendecido con la leucemia de voz; Copyright Chris Pablo
Friday, January 01, 2010 

Category: Life
I recently learned of the passing earlier this month of a very special friend and human being who saved the lives of many and inspired everyone fortunate enough to know him; Chris Pablo.

The following saying hung from my IV pole while I was in the hospital recovering from a mastectomy and breast reconstruction in October of 1992.

"Out of difficulties, grow miracles."

~ Author Unknown

These words have continued to hold true to me and inspire me since that time. I hope that you will find truth and inspiration in Chris Pablo's life and in his words below.


The following is a speech written by a dear friend and colleague, Chris Pablo, an amazing inspiration and person making a significant impact in our world.

By
Chris Pablo
Makiki Christian Church
July 8, 2000

… so that God's works could be revealed in you . . .

I was blessed with leukemia 4 years ago, but I didn't know it at the time.

Yes, that's right, I said, I was "blessed" with leukemia

We don't often look at adversity or anything life threatening like cancer or leukemia as a "blessing".

You're probably thinking, how can anybody be "blessed" with a life-threatening disease? You know that leukemia can kill. It does often. I begin every morning with prayer. In my prayer time, I remember fellow leukemia patients who did not survive. I am blessed; I beat the odds!

After my diagnosis was publicly known, I was often asked, "how did you get leukemia"? I said that it didn't matter how I got it because that was about yesterday. What's important is why I got it because that's about tomorrow.

A few years ago I finally find out why. Chapter 9 of John's gospel tells about the parable of the blind man whose sight was restored after washing away the mud that Jesus rubbed in his eyes. His apostles were curious about why the man had been cursed with this affliction. They asked, "was it his sin, or the sin of his parents that caused him to be born blind?" Jesus answered, "it was neither his sin nor the sins of his parents that made him blind". "He was made blind so that God's works may be revealed in him".

In much the same way, I was given leukemia so that I might see the wonder of God's works—to witness miracles. So, that I might learn valuable lessons on my journey with leukemia and beyond.

That journey began not with a "bang", but with a whimper 6 years ago. During dinner I bit my tongue, By the time I went to bed the bleeding had not stopped. The next day I awoke on a blood soaked pillow. Off I went to the emergency room for stitches and a blood test that confirmed that my white blood count was too high and my platelet count was too low. That's why it continued to bleed into the next day.

A few more tests and a few weeks later, the diagnosis was confirmed: CHRONIC MYELOGENOUS LEUKEMIA. That's the kind of leukemia where your bone marrow malfunctions. A chromosomal defect known as the Philadelphia chromosome causes your bone marrow to produce more white blood cells than you need. To make matters worse, the white blood cells are released into your blood stream before they mature so they are incapable of doing the job of fighting off infections. Your immune system is compromised. A simple infection could make you really sick or worse, it could kill you!

By the way, just finding out that I had leukemia was like a death sentence. You're gonna die soon—if not right now, maybe in 3-5 years at most after suffering a slow and agonizing death.

You know, when you're faced with something tough. You really need help. What you need is hope. Hope that what you got is a mistake, a misdiagnosis. Hope that there will be a cure. Hope that there will be a miracle.

So, help me out now.

When the going gets tough, where do the tough go?

Shopping?

No!

When the going gets tough, the tough goes GOLFING!

And, that's just what I did. And, I'm glad that I did because, when I went to the Koolau Golf Course 2 months after I was diagnosed with leukemia, I found hope. I found hope in a messenger on the driving range.

I will never know why I was compelled to pick up this ball that I was about to hit.

Why did I keep it?

What was the message on this golf ball?

"Beat leukemia"!

That's right, it said, "beat leukemia". I found hope in the most unlikely of places—on the driving range. I believe this was nothing short of a miracle.

But, that wasn't the end of my story. It was the beginning. I only found hope. I didn't find a cure.

You know there is "good news" about leukemia. Unlike most cancers, there is a cure. But, the bad news is 'you've got to find it!" You've got to find a matching bone marrow donor. And, that's really hard. It's like finding a needle in a haystack.

(That's why Roy Yonashiro and the Hawaii Bone Marrow Donor Registry is here this morning to help you to become a life-saving donor.)

Family members are the best possibility. My only brother was not a match. So, my friends initiated bone marrow donor drives beginning in the first months of 1996. Most drives were small and not well attended. After the first month, none of the registrants matched me. I was disappointed and began to despair.

Then, on Good Friday in 1997, a 2-year-old girl was diagnosed with acute leukemia. Fortunately, her large and resourceful family was ready to go all out to recruit donors. They had to find a donor fast because they doctor gave her only a few months to live.

I joined Alana Dung's family in every donor drive. The response was incredible. In 2 short months over 32,000 people in Hawaii showed up and stuck out their arms so that a sample of their blood could be tested to see if they would be a match, giving hope to all of us who were in need of a bone marrow transplant. I didn't now it then, that my donor was motivated by Alana's plight.

What's the lesson in this?

It goes back to having hope. You've got to trust that someone will be out there with that bone marrow match. Your chance of a lifetime might just be in the stranger who shows up at a bone marrow donor drive. [Just like what's going on outside.]

I learned a valuable lesson from these donor recruitment drives. Especially from those who approached me and confidently proclaimed, "I'm going to be a match for you!" The lesson is this—when your life depends on it, everyone matters, even strangers. This is a lesson that has meaning today—every life is precious and valuable. This lesson shapes my attitude about people and how I treat them.

I can tell you (I) thought that just finding a match was not enough. To survive a transplant takes another miracle. The cards are stacked against you! Both Brandon Emley and Alana Dung found perfect matches and it gave their families another year to enjoy their precious children. But transplants often fail. In fact the statistics show that only 40% of patients who have bone marrow transplants survive. To put it another way, 6 out of 10 bone marrow transplant patients die! I think the statistics are optimistically high, my experience leads me to believe that the number of victims is tragically higher.

In the words of Alana's uncle, Dr. Alvin Chung, it really "takes a miracle" to find a donor and survive the transplant.

It also takes faith and trust—the belief that you can trust God with your life.

It's also about surrender.

Let me share another moment of discovery.

In October of 1996, a month before my transplant, I asked myself:

What are you afraid of?

Dying and leaving my wife and children behind.

Whose life is this?

Mine, of course.

Who gave it to you?

God did.

I realized that this life didn't belong to me. It belonged to God. He gave it to me. So, I surrendered it.

I said,

"Lord take me home; or let me stay here, but if you do, let me be your instrument. Le me be your messenger. Use me."

From that point on, I was no longer afraid because I had surrendered, and my life was now in God's hands.

So, I am here today in fulfillment of my prayer and my covenant.

Speaking of instruments, when I first me my donor he refused praise. He humbly said, "I am just a messenger. I am a vessel from God to deliver this marrow to Chris."

He, too, knows and has lived the message of the parable of the blind man. No, Roger Ariola is not blind. But, he is a double amputee. He lost both of his legs over 30 years ago while doing a good deed. The Good Samaritan stopped to help a motorist who was stranded on Salt Lake Boulevard. While helping, a drunk driver ran him down and nearly killed him. It cost Roger both of his legs. That was his affliction. Some 30 years later, he finally found "God's works" in his own good deed. Seeing the plight of Alana Dung, Roger flew to Honolulu from Kauai to register to be a bone marrow donor. A few months later he was re-tested and it was confirmed. He was a perfect match for me! Giving life saving marrow was "no big deal" to Roger. He believes as I do, that a candle loses none of its light by lighting another candle.

Roger and I have become close friends, we communicate frequently by phone and see each other often. Best of all, we work together to recruit more bone marrow donors. He is truly my "blood brother".

My challenge is not over. The risk of relapse, like what Alana Dung and Brandon Emley experienced, is still very real to me. I continue to face medical challenges as a result of the transplant.

The experience of leukemia over the past 6 years has taught my family and me these other lessons:

• Appreciate the beauty of each day; even when it rains. An old Arab proverb says, "all sunshine without rain makes a desert." Think of rain as green paint. There are no rainbows without rain.

• There is strength in the love of family, friends, and strangers. Sometimes especially strangers.

• Believe in the power of prayer.

• Adversity allows us to see God's works in us.

• Accept life's challenges. You have it in you to do whatever it takes to overcome it. Accept and face it with grace and dignity. Before I left for my transplant, a fellow leukemia patient assured me—GOD never gives you more than you can handle. With His help you can handle anything. You are never alone when you are in His hands.

I'd like to conclude my remarks with this poem:

I walked a mile with pleasure and she chattered all the way, but left me none the wiser for all she had to say.

Then, I walked a mile with sorrow and not a word said she, but, oh the things I learned from her, when sorrow walked with me.


Blessed with Leukemia Speech; Copyright Chris Pablo
Thursday, December 31, 2009 

Category: Life


http://www.youtube.com/watch?v=g_6xaN26eqw
I am blessed to have known & worked with Chris Pablo; to count him among my friends. May you be inspired my his example & his life.



Thursday, December 31, 2009 


http://www.hawaiinewsnow.com/Global/story.asp?S=11...

Cancer patient advocate Chris Pablo dies at 59 - Hawaii News Now - KGMB and KHNL Home
Shared via AddThis

May you rest in peace, Chris. Your Light will continue to shine brightly and your inspiring life and example will continue to reach and help many.

Thursday, December 31, 2009 

Category: News and Politics


http://www.hawaiinewsnow.com/Global/story.asp?S=11...
I am blessed to have known & worked with Chris Pablo; to count him among my friends. May you be inspired my his example & his life. "A Special Golf Ball, a Special Friend and a Great Loss. We lost a very good friend who found a most interesting golf ball that took on a life of its own years ago. Chris Pablo died in Honolulu last week.




Thursday, December 31, 2009 

Category: Life


http://www.starbulletin.com/news/20091211_beloved_...
Beloved advocate reached out on cancer - Hawaii News - Starbulletin.com
Shared via AddThis



Chris was a rare and beautiful light in our world and his impact and spirit will continue to shine brightly.




Thursday, December 31, 2009 

Category: Life
I recently learned of the passing earlier this month of a very special friend and human being who saved the lives of many and inspired everyone fortunate enough to know him; Chris Pablo.

The following saying hung from my IV pole while I was in the hospital recovering from a mastectomy and breast reconstruction in October of 1992.

"Out of difficulties, grow miracles."

~ Author Unknown

These words have continued to hold true to me and inspire me since that time. I hope that you will find truth and inspiration in Chris Pablo's life and in his words below.


The following is a speech written by a dear friend and colleague, Chris Pablo, an amazing inspiration and person making a significant impact in our world.

By
Chris Pablo
Makiki Christian Church
July 8, 2000

… so that God's works could be revealed in you . . .

I was blessed with leukemia 4 years ago, but I didn't know it at the time.

Yes, that's right, I said, I was "blessed" with leukemia

We don't often look at adversity or anything life threatening like cancer or leukemia as a "blessing".

You're probably thinking, how can anybody be "blessed" with a life-threatening disease? You know that leukemia can kill. It does often. I begin every morning with prayer. In my prayer time, I remember fellow leukemia patients who did not survive. I am blessed; I beat the odds!

After my diagnosis was publicly known, I was often asked, "how did you get leukemia"? I said that it didn't matter how I got it because that was about yesterday. What's important is why I got it because that's about tomorrow.

A few years ago I finally find out why. Chapter 9 of John's gospel tells about the parable of the blind man whose sight was restored after washing away the mud that Jesus rubbed in his eyes. His apostles were curious about why the man had been cursed with this affliction. They asked, "was it his sin, or the sin of his parents that caused him to be born blind?" Jesus answered, "it was neither his sin nor the sins of his parents that made him blind". "He was made blind so that God's works may be revealed in him".

In much the same way, I was given leukemia so that I might see the wonder of God's works—to witness miracles. So, that I might learn valuable lessons on my journey with leukemia and beyond.

That journey began not with a "bang", but with a whimper 6 years ago. During dinner I bit my tongue, By the time I went to bed the bleeding had not stopped. The next day I awoke on a blood soaked pillow. Off I went to the emergency room for stitches and a blood test that confirmed that my white blood count was too high and my platelet count was too low. That's why it continued to bleed into the next day.

A few more tests and a few weeks later, the diagnosis was confirmed: CHRONIC MYELOGENOUS LEUKEMIA. That's the kind of leukemia where your bone marrow malfunctions. A chromosomal defect known as the Philadelphia chromosome causes your bone marrow to produce more white blood cells than you need. To make matters worse, the white blood cells are released into your blood stream before they mature so they are incapable of doing the job of fighting off infections. Your immune system is compromised. A simple infection could make you really sick or worse, it could kill you!

By the way, just finding out that I had leukemia was like a death sentence. You're gonna die soon—if not right now, maybe in 3-5 years at most after suffering a slow and agonizing death.

You know, when you're faced with something tough. You really need help. What you need is hope. Hope that what you got is a mistake, a misdiagnosis. Hope that there will be a cure. Hope that there will be a miracle.

So, help me out now.

When the going gets tough, where do the tough go?

Shopping?

No!

When the going gets tough, the tough goes GOLFING!

And, that's just what I did. And, I'm glad that I did because, when I went to the Koolau Golf Course 2 months after I was diagnosed with leukemia, I found hope. I found hope in a messenger on the driving range.

I will never know why I was compelled to pick up this ball that I was about to hit.

Why did I keep it?

What was the message on this golf ball?

"Beat leukemia"!

That's right, it said, "beat leukemia". I found hope in the most unlikely of places—on the driving range. I believe this was nothing short of a miracle.

But, that wasn't the end of my story. It was the beginning. I only found hope. I didn't find a cure.

You know there is "good news" about leukemia. Unlike most cancers, there is a cure. But, the bad news is 'you've got to find it!" You've got to find a matching bone marrow donor. And, that's really hard. It's like finding a needle in a haystack.

(That's why Roy Yonashiro and the Hawaii Bone Marrow Donor Registry is here this morning to help you to become a life-saving donor.)

Family members are the best possibility. My only brother was not a match. So, my friends initiated bone marrow donor drives beginning in the first months of 1996. Most drives were small and not well attended. After the first month, none of the registrants matched me. I was disappointed and began to despair.

Then, on Good Friday in 1997, a 2-year-old girl was diagnosed with acute leukemia. Fortunately, her large and resourceful family was ready to go all out to recruit donors. They had to find a donor fast because they doctor gave her only a few months to live.

I joined Alana Dung's family in every donor drive. The response was incredible. In 2 short months over 32,000 people in Hawaii showed up and stuck out their arms so that a sample of their blood could be tested to see if they would be a match, giving hope to all of us who were in need of a bone marrow transplant. I didn't now it then, that my donor was motivated by Alana's plight.

What's the lesson in this?

It goes back to having hope. You've got to trust that someone will be out there with that bone marrow match. Your chance of a lifetime might just be in the stranger who shows up at a bone marrow donor drive. [Just like what's going on outside.]

I learned a valuable lesson from these donor recruitment drives. Especially from those who approached me and confidently proclaimed, "I'm going to be a match for you!" The lesson is this—when you're life depends on it, everyone matters, even strangers. This is a lesson that has meaning today—every life is precious and valuable. This lesson shapes my attitude about people and how I treat them.

I can tell you thought that just finding a match was not enough. To survive a transplant takes another miracle. The cards are stacked against you! Both Brandon Emley and Alana Dung found perfect matches and it gave their families another year to enjoy their precious children. But transplants often fail. In fact the statistics show that only 40% of patients who have bone marrow transplants survive. To put it another way, 6 out of 10 bone marrow transplant patients die! I think the statistics are optimistically high, my experience leads me to believe that the number of victims is tragically higher.

In the words of Alana's uncle, Dr. Alvin Chung, it really "takes a miracle" to find a donor and survive the transplant.

It also takes faith and trust—the belief that you can trust God with your life.

It's also about surrender.

Let me share another moment of discovery.

In October of 1996, a month before my transplant, I asked myself:

What are you afraid of?

Dying and leaving my wife and children behind.

Whose life is this?

Mine, of course.

Who gave it to you?

God did.

I realized that this life didn't belong to me. It belonged to God. He gave it to me. So, I surrendered it.

I said,

"Lord take me home; or let me stay here, but if you do, let me be your instrument. Le me be your messenger. Use me."

From that point on, I was no longer afraid because I had surrendered, and my life was now in God's hands.

So, I am here today in fulfillment of my prayer and my covenant.

Speaking of instruments, when I first me my donor he refused praise. He humbly said, "I am just a messenger. I am a vessel from God to deliver this marrow to Chris."

He, too, knows and has lived the message of the parable of the blind man. No, Roger Ariola is not blind. But, he is a double amputee. He lost both of his legs over 30 years ago while doing a good deed. The Good Samaritan stopped to help a motorist who was stranded on Salt Lake Boulevard. While helping, a drunk driver ran him down and nearly killed him. It cost Roger both of his legs. That was his affliction. Some 30 years later, he finally found "God's works" in his own good deed. Seeing the plight of Alana Dung, roger flew to Honolulu from Kauai to register to be a bone marrow donor. A few months later he was re-tested and it was confirmed. He was a perfect match for me! Giving life saving marrow was "no big deal" to Roger. He believes as I do, that a candle loses none of its light by lighting another candle.

Roger and I have become close friends, we communicate frequently by phone and see each other often. Best of all, we work together to recruit more bone marrow donors. He is truly my "blood brother".

My challenge is not over. The risk of relapse, like what Alana Dung and Brandon Emley experienced, is still very real to me. I continue to face medical challenges as a result of the transplant.

The experience of leukemia over the past 6 years has taught my family and me these other lessons:

• Appreciate the beauty of each day; even when it rains. An old Arab proverb says, "all sunshine without rain makes a desert." Think of rain as green paint. There are no rainbows without rain.

• There is strength in the love of family, friends, and strangers. Sometimes especially strangers.

• Believe in the power of prayer.

• Adversity allows us to see God's works in us.

• Accept life's challenges. You have it in you to do whatever it takes to overcome it. Accept and face it with grace and dignity. Before I left for my transplant, a fellow leukemia patient assured me—GOD never gives you more than you can handle. With His help you can handle anything. You are never alone when you are in His hands.

I'd like to conclude my remarks with this poem:

I walked a mile with pleasure and she chattered all the way, but left me none the wiser for all she had to say.

Then, I walked a mile with sorrow and not a word said she, but, oh the things I learned from her, when sorrow walked with me.


Blessed with Leukemia Speech; Copyright Chris Pablo
Saturday, December 26, 2009 

Category: Life

CAPAX UNIVERSI




Capax universi, capable of the universe are your arms when they move with love.


And I know it is true that your feet are never more alive than when they are in defense of a good cause.


I want to fund your efforts: Stay near beauty, for she will always strengthen you.


She will bring your mouth close to hers and breathe – inspire you the way light does fields....




 ~ Saint Thomas Aquinas


Tuesday, September 15, 2009 

Category: Life

Source & Resource: The National Cancer Institute (NCI) & NCO Booklet, "What You Need to Know about Pancreatic Cancer"; Website: http://www.cancer.gov/cancertopics/wyntk/pancreas/allpages


Questions about cancer?

 

Call  the NCI at 1-800-4-CANCER


 

 

National Cancer Institute Information Resources

 


Introduction


This National Cancer Institute (NCI) booklet (NIH Publication No. 01-1560) has important information about cancer* of the pancreas. In the United States, cancer of the pancreas is diagnosed in more than 29,000 people every year.


This booklet discusses possible causes of cancer of the pancreas. It also describes symptoms, diagnosis, treatment, and followup care. This information can help patients and their families better understand and cope with this disease.


Scientists are studying cancer of the pancreas to learn more about this disease. They are finding out more about its causes. Doctors are exploring new ways to treat it. Research already has led to better quality of life for people with cancer of the pancreas.


Information specialists at the NCI's Cancer Information Service at 1-800-4-CANCER can help people with questions about cancer and can send NCI publications. Also, many NCI publications are on the Internet at http://www.cancer.gov/publications. People in the United States and its territories may use this Web site to order publications. This Web site also explains how people outside the United States can mail or fax their requests for NCI publications.

 

*Words that may be new to readers are in italics. The "Dictionary" gives definitions of these terms. Some words in the "Dictionary" have a "sounds-like" spelling to show how to pronounce them.



The Pancreas


The pancreas is a gland located deep in the abdomen between the stomach and the spine (backbone). The liver, intestine, and other organs surround the pancreas.

The pancreas is about ..6 inches.. long and is shaped like a flat pear. The widest part of the pancreas is the head, the middle section is the body, and the thinnest part is the tail.

 

The pancreas makes insulin and other hormones. These hormones enter the bloodstream and travel throughout the body. They help the body use or store the energy that comes from food. For example, insulin helps control the amount of sugar in the blood.


The pancreas also makes pancreatic juices. These juices contain enzymes that help digest food. The pancreas releases the juices into a system of ducts leading to the common bile duct. The common bile duct empties into the duodenum, the first section of the small intestine.

 


Understanding Cancer


Cancer is a group of many related diseases. All cancers begin in cells, the body's basic unit of life. Cells make up tissues, and tissues make up the organs of the body.


Normally, cells grow and divide to form new cells as the body needs them. When cells grow old and die, new cells take their place.


Sometimes this orderly process breaks down. New cells form when the body does not need them, or old cells do not die when they should. These extra cells can form a mass of tissue called a growth or tumor.


Tumors can be benign or malignant:


           Benign tumors are not cancer. Usually, doctors can remove them. In most cases, benign tumors do not come back after they are removed. Cells from benign tumors do not spread to tissues around them or to other parts of the body. Most important, benign tumors are rarely a threat to life.


           Malignant tumors are cancer. They are generally more serious and may be life threatening. Cancer cells can invade and damage nearby tissues and organs. Also, cancer cells can break away from a malignant tumor and enter the bloodstream or lymphatic system. That is how cancer cells spread from the original cancer (primary tumor) to form new tumors in other organs. The spread of cancer is called metastasis.



Most pancreatic cancers begin in the ducts that carry pancreatic juices. Cancer of the pancreas may be called pancreatic cancer or carcinoma of the pancreas.


A rare type of pancreatic cancer begins in the cells that make insulin and other hormones. Cancer that begins in these cells is called islet cell cancer. This booklet does not deal with this rare disease. The Cancer Information Service (1-800-4-CANCER) can provide information about islet cell cancer.


When cancer of the pancreas spreads (metastasizes) outside the pancreas, cancer cells are often found in nearby lymph nodes. If the cancer has reached these nodes, it means that cancer cells may have spread to other lymph nodes or other tissues, such as the liver or lungs. Sometimes cancer of the pancreas spreads to the peritoneum, the tissue that lines the abdomen.


When cancer spreads from its original place to another part of the body, the new tumor has the same kind of abnormal cells and the same name as the primary tumor. For example, if cancer of the pancreas spreads to the liver, the cancer cells in the liver are pancreatic cancer cells. The disease is metastatic pancreatic cancer, not liver cancer. It is treated as pancreatic cancer, not liver cancer.



Pancreatic Cancer: Who's at Risk?


No one knows the exact causes of pancreatic cancer. Doctors can seldom explain why one person gets pancreatic cancer and another does not. However, it is clear that this disease is not contagious. No one can "catch" cancer from another person.



Risk Factors


Research has shown that people with certain risk factors are more likely than others to develop pancreatic cancer. A risk factor is anything that increases a person's chance of developing a disease.


Studies have found the following risk factors:


           Age -- The likelihood of developing pancreatic cancer increases with age. Most pancreatic cancers occur in people over the age of 60.


           Smoking -- Cigarette smokers are two or three times more likely than nonsmokers to develop pancreatic cancer.


           Diabetes -- Pancreatic cancer occurs more often in people who have diabetes than in people who do not.


           Being male -- More men than women are diagnosed with pancreatic cancer.


           Being African American -- African Americans are more likely than Asians, Hispanics, or whites to get pancreatic cancer.


           Family history -- The risk for developing pancreatic cancer triples if a person's mother, father, sister, or brother had the disease. Also, a family history of colon or ovarian cancer increases the risk of pancreatic cancer.


           Chronic pancreatitis -- Chronic pancreatitis is a painful condition of the pancreas. Some evidence suggests that chronic pancreatitis may increase the risk of pancreatic cancer.



Other studies suggest that exposure to certain chemicals in the workplace or a diet high in fat may increase the chance of getting pancreatic cancer.


Most people with known risk factors do not get pancreatic cancer. On the other hand, many who do get the disease have none of these factors. People who think they may be at risk for pancreatic cancer should discuss this concern with their doctor. The doctor may suggest ways to reduce the risk and can plan an appropriate schedule for checkups.



Symptoms


Pancreatic cancer is sometimes called a "silent disease" because early pancreatic cancer often does not cause symptoms. But, as the cancer grows, symptoms may include:


           Pain in the upper abdomen or upper back


           Yellow skin and eyes, and dark urine from jaundice


           Weakness


           Loss of appetite


           Nausea and vomiting


           Weight loss


These symptoms are not sure signs of pancreatic cancer. An infection or other problem could also cause these symptoms. Only a doctor can diagnose the cause of a person's symptoms. Anyone with these symptoms should see a doctor so that the doctor can treat any problem as early as possible.

 


Diagnosis


If a patient has symptoms that suggest pancreatic cancer, the doctor asks about the patient's medical history. The doctor may perform a number of procedures, including one or more of the following:


           Physical exam -- The doctor examines the skin and eyes for signs of jaundice. The doctor then feels the abdomen to check for changes in the area near the pancreas, liver, and gallbladder. The doctor also checks for ascites, an abnormal buildup of fluid in the abdomen.


           Lab tests -- The doctor may take blood, urine, and stool samples to check for bilirubin and other substances. Bilirubin is a substance that passes from the liver to the gallbladder to the intestine. If the common bile duct is blocked by a tumor, the bilirubin cannot pass through normally. Blockage may cause the level of bilirubin in the blood, stool, or urine to become very high. High bilirubin levels can result from cancer or from noncancerous conditions.


           CT scan (Computed tomography) -- An x-ray machine linked to a computer takes a series of detailed pictures. The x-ray machine is shaped like a donut with a large hole. The patient lies on a bed that passes through the hole. As the bed moves slowly through the hole, the machine takes many x-rays. The computer puts the x-rays together to create pictures of the pancreas and other organs and blood vessels in the abdomen.


           Ultrasonography -- The ultrasound device uses sound waves that cannot be heard by humans. The sound waves produce a pattern of echoes as they bounce off internal organs. The echoes create a picture of the pancreas and other organs inside the abdomen. The echoes from tumors are different from echoes made by healthy tissues.


The ultrasound procedure may use an external or internal device, or both types:


o          Transabdominal ultrasound: To make images of the pancreas, the doctor places the ultrasound device on the abdomen and slowly moves it around.


o          EUS (Endoscopic ultrasound): The doctor passes a thin, lighted tube (endoscope) through the patient's mouth and stomach, down into the first part of the small intestine. At the tip of the endoscope is an ultrasound device. The doctor slowly withdraws the endoscope from the intestine toward the stomach to make images of the pancreas and surrounding organs and tissues.


           ERCP (endoscopic retrograde cholangiopancreatography) -- The doctor passes an endoscope through the patient's mouth and stomach, down into the first part of the small intestine. The doctor slips a smaller tube (catheter) through the endoscope into the bile ducts and pancreatic ducts. After injecting dye through the catheter into the ducts, the doctor takes x-ray pictures. The x-rays can show whether the ducts are narrowed or blocked by a tumor or other condition.


           PTC (percutaneous transhepatic cholangiography) -- A dye is injected through a thin needle inserted through the skin into the liver. Unless there is a blockage, the dye should move freely through the bile ducts. The dye makes the bile ducts show up on x-ray pictures. From the pictures, the doctor can tell whether there is a blockage from a tumor or other condition.


           Biopsy -- In some cases, the doctor may remove tissue. A pathologist then uses a microscope to look for cancer cells in the tissue. The doctor may obtain tissue in several ways. One way is by inserting a needle into the pancreas to remove cells. This is called fine-needle aspiration. The doctor uses x-ray or ultrasound to guide the needle. Sometimes the doctor obtains a sample of tissue during EUS or ERCP. Another way is to open the abdomen during an operation.



A person who needs a biopsy may want to ask the doctor the following questions:


           What kind of biopsy will I have?


           How long will it take? Will I be awake? Will it hurt?


           Are there any risks?


           How soon will I know the results?


           If I do have cancer, who will talk to me about treatment? When?



Staging


When pancreatic cancer is diagnosed, the doctor needs to know the stage, or extent, of the disease to plan the best treatment. Staging is a careful attempt to find out the size of the tumor in the pancreas, whether the cancer has spread, and if so, to what parts of the body.


The doctor may determine the stage of pancreatic cancer at the time of diagnosis, or the patient may need to have more tests. Such tests may include blood tests, a CT scan, ultrasonography, laparoscopy, or angiography. The test results will help the doctor decide which treatment is appropriate.



Treatment


Many people with pancreatic cancer want to take an active part in making decisions about their medical care. They want to learn all they can about their disease and their treatment choices. However, the shock and stress that people may feel after a diagnosis of cancer can make it hard for them to think of everything they want to ask the doctor. Often it helps to make a list of questions before an appointment. To help remember what the doctor says, patients may take notes or ask whether they may use a tape recorder. Some patients also want to have a family member or friend with them when they talk to the doctor-to take part in the discussion, to take notes, or just to listen.


Cancer of the pancreas is very hard to control with current treatments. For that reason, many doctors encourage patients with this disease to consider taking part in a clinical trial. Clinical trials are an important option for people with all stages of pancreatic cancer. The section on "The Promise of Cancer Research" has more information about clinical trials.


At this time, pancreatic cancer can be cured only when it is found at an early stage, before it has spread. However, other treatments may be able to control the disease and help patients live longer and feel better. When a cure or control of the disease is not possible, some patients and their doctors choose palliative therapy. Palliative therapy aims to improve quality of life by controlling pain and other problems caused by this disease.


The doctor may refer patients to an oncologist, a doctor who specializes in treating cancer, or patients may ask for a referral. Specialists who treat pancreatic cancer include surgeons, medical oncologists, and radiation oncologists. Treatment generally begins within a few weeks after the diagnosis. There will be time for patients to talk with the doctor about treatment choices, get a second opinion, and learn more about the disease.



Getting a Second Opinion


Before starting treatment, a patient may want a second opinion about the diagnosis and the treatment plan. Some insurance companies require a second opinion; others may cover a second opinion if the patient requests it. Gathering medical records and arranging to see another doctor may take a little time. In most cases, a brief delay to get another opinion will not make therapy less helpful.


There are a number of ways to find a doctor for a second opinion:


           The doctor may refer patients to one or more specialists. At cancer centers, several specialists often work together as a team.


           The Cancer Information Service (1-800-4-CANCER) can tell callers about treatment facilities, including cancer centers and other programs supported by the National Cancer Institute, and can send printed information about finding a doctor.


           A local medical society, a nearby hospital, or a medical school can usually provide the name of specialists.


 

Preparing for Treatment


The doctor can describe treatment choices and discuss the results expected with each treatment option. The doctor and patient can work together to develop a treatment plan that fits the patient's needs.


Treatment depends on where in the pancreas the tumor started and whether the disease has spread. When planning treatment, the doctor also considers other factors, including the patient's age and general health.


These are some questions a person may want to ask the doctor before treatment begins:


           What is the diagnosis?


           Where in the pancreas did the cancer start?


           Is there any evidence the cancer has spread? What is the stage of the disease?


           Do I need any more tests to check whether the disease has spread?


           What are my treatment choices? Which do you recommend for me? Why?


           What are the expected benefits of each kind of treatment?


           What are the risks and possible side effects of each treatment?


           What is the treatment likely to cost? Is this treatment covered by my insurance plan?


           How will treatment affect my normal activities?


           Would a clinical trial (research study) be appropriate for me?


People do not need to ask all of their questions or understand all of the answers at one time. They will have other chances to ask the doctor to explain things that are not clear and to ask for more information.

 


Methods of Treatment


People with pancreatic cancer may have several treatment options. Depending on the type and stage, pancreatic cancer may be treated with surgery, radiation therapy, or chemotherapy. Some patients have a combination of therapies.


Surgery may be used alone or in combination with radiation therapy and chemotherapy.


The surgeon may remove all or part of the pancreas. The extent of surgery depends on the location and size of the tumor, the stage of the disease, and the patient's general health.


           Whipple procedure: If the tumor is in the head (the widest part) of the pancreas, the surgeon removes the head of the pancreas and part of the small intestine, bile duct, and stomach. The surgeon may also remove other nearby tissues.


           Distal pancreatectomy: The surgeon removes the body and tail of the pancreas if the tumor is in either of these parts. The surgeon also removes the spleen.


           Total pancreatectomy: The surgeon removes the entire pancreas, part of the small intestine, a portion of the stomach, the common bile duct, the gallbladder, the spleen, and nearby lymph nodes.


Sometimes the cancer cannot be completely removed. But if the tumor is blocking the common bile duct or duodenum, the surgeon can create a bypass. A bypass allows fluids to flow through the digestive tract. It can help relieve jaundice and pain resulting from a blockage.


The doctor sometimes can relieve blockage without doing bypass surgery. The doctor uses an endoscope to place a stent in the blocked area. A stent is a tiny plastic or metal mesh tube that helps keep the duct or duodenum open.


After surgery, some patients are fed liquids intravenously (by IV) and through feeding tubes placed into the abdomen. Patients slowly return to eating solid foods by mouth. A few weeks after surgery, the feeding tubes are removed.


These are some questions a person may want to ask the doctor before having surgery:


           What kind of operation will I have?


           How will I feel after the operation?


           How will you treat my pain?


           What other treatment will I need?


           How long will I be in the hospital?


           Will I need a feeding tube after surgery? Will I need a special diet?


           What are the long-term effects?


           When can I get back to my normal activities?


           How often will I need checkups?



Radiation therapy (also called radiotherapy) uses high-energy rays to kill cancer cells. A large machine directs radiation at the abdomen. Radiation therapy may be given alone, or with surgery, chemotherapy, or both.


Radiation therapy is local therapy. It affects cancer cells only in the treated area. For radiation therapy, patients go to the hospital or clinic, often 5 days a week for several weeks.


Doctors may use radiation to destroy cancer cells that remain in the area after surgery. They also use radiation to relieve pain and other problems caused by the cancer.



These are some questions a person may want to ask the doctor before having radiation therapy:


           Why do I need this treatment?


           When will the treatments begin? When will they end?


           How will I feel during therapy? Are there side effects?


           What can I do to take care of myself during therapy? Are there certain foods that I should eat or avoid?


           How will we know if the radiation is working?


           Will I be able to continue my normal activities during treatment?



Chemotherapy is the use of drugs to kill cancer cells. Doctors also give chemotherapy to help reduce pain and other problems caused by pancreatic cancer. It may be given alone, with radiation, or with surgery and radiation.


Chemotherapy is systemic therapy. The doctor usually gives the drugs by injection. Once in the bloodstream, the drugs travel throughout the body.


Usually chemotherapy is an outpatient treatment given at the hospital, clinic, doctor's office, or home. However, depending on which drugs are given and the patient's general health, the patient may need to stay in the hospital.



Patients may want to ask these questions about chemotherapy:


           Why do I need this treatment?


           What will it do?


           What drugs will I be taking? How will they be given? Will I need to stay in the hospital?


           Will the treatment cause side effects? What can I do about them?


           How long will I be on this treatment?


 

Side Effects of Treatment


Because cancer treatment may damage healthy cells and tissues, unwanted side effects are common. These side effects depend on many factors, including the type and extent of the treatment. Side effects may not be the same for each person, and they may even change from one treatment session to the next. The health care team will explain possible side effects and how they will help the patient manage them.


The NCI provides helpful booklets about cancer treatments and coping with side effects, such as Radiation Therapy and You, Chemotherapy and You, and Eating Hints for Cancer Patients. See the sections called "National Cancer Institute Information Resources" and "National Cancer Institute Booklets" for other sources of information about side effects.



Surgery


Surgery for pancreatic cancer is a major operation. Patients need to stay in the hospital for several days afterward. Patients may feel weak or tired. Most need to rest at home for about a month. The length of time it takes to regain strength varies.


The side effects of surgery depend on the extent of the operation, the person's general health, and other factors. Most patients have pain for the first few days after surgery. Pain can be controlled with medicine, and patients should discuss pain relief with the doctor or nurse. The section on "Pain Control" has more information.


Removal of part or all of the pancreas may make it hard for a patient to digest foods. The health care team can suggest a diet plan and medicines to help relieve diarrhea, pain, cramping, or feelings of fullness. During the recovery from surgery, the doctor will carefully monitor the patient's diet and weight. At first, a patient may have only liquids and may receive extra nourishment intravenously or by feeding tube into the intestine. Solid foods are added to the diet gradually.


Patients may not have enough pancreatic enzymes or hormones after surgery. Those who do not have enough insulin may develop diabetes. The doctor can give the patient insulin, other hormones, and enzymes. The section "Nutrition for Cancer Patients" has more information.


 

Radiation Therapy


Radiation therapy may cause patients to become very tired as treatment continues. Resting is important, but doctors usually advise patients to try to stay as active as they can. In addition, when patients receive radiation therapy, the skin in the treated area may sometimes become red, dry, and tender.


Radiation therapy to the abdomen may cause nausea, vomiting, diarrhea, or other problems with digestion. The health care team can offer medicine or suggest diet changes to control these problems. For most patients, the side effects of radiation therapy go away when treatment is over.


 

Chemotherapy


The side effects of chemotherapy depend mainly on the drugs and the doses the patient receives as well as how the drugs are given. In addition, as with other types of treatment, side effects vary from patient to patient.


Systemic chemotherapy affects rapidly dividing cells throughout the body, including blood cells. Blood cells fight infection, help the blood to clot, and carry oxygen to all parts of the body. When anticancer drugs damage healthy blood cells, patients are more likely to get infections, may bruise or bleed easily, and may have less energy. Cells in hair roots and cells that line the digestive tract also divide rapidly. As a result, patients may lose their hair and may have other side effects such as poor appetite, nausea and vomiting, diarrhea, or mouth sores. Usually, these side effects go away gradually during the recovery periods between treatments or after treatment is over. The health care team can suggest ways to relieve side effects.


 

Pain Control


Pain is a common problem for people with pancreatic cancer. The tumor can cause pain by pressing against nerves and other organs.


The patient's doctor or a specialist in pain control can relieve or reduce pain in several ways:


           Pain medicine - Medicines often can relieve pain. (These medicines may make people drowsy and constipated, but resting and taking laxatives can help.)


           Radiation - High-energy rays can help relieve pain by shrinking the tumor.


           Nerve block - The doctor may inject alcohol into the area around certain nerves in the abdomen to block the feeling of pain.


           Surgery - The surgeon may cut certain nerves to block pain.


The doctor may suggest other ways to relieve or reduce pain. For example, massage, acupuncture, or acupressure may be used along with other approaches to help relieve pain. Also, the patient may learn relaxation techniques such as listening to slow music or breathing slowly and comfortably.


More information about pain control can be found in the NCI booklet Pain Control. The NCI's Cancer Information Service can send this booklet.



Nutrition


People with pancreatic cancer may not feel like eating, especially if they are uncomfortable or tired. Also, the side effects of treatment such as poor appetite, nausea, or vomiting can make eating difficult. Foods may taste different. Nevertheless, patients should try to get enough calories and protein to control weight loss, maintain strength, and promote healing. Also, eating well often helps people with cancer feel better and have more energy.


Careful planning and checkups are important. Cancer of the pancreas and its treatment may make it hard for patients to digest food and maintain the proper blood sugar level. The doctor will check the patient for weight loss, weakness, and lack of energy. Patients may need to take medicines to replace the enzymes and hormones made by the pancreas. The doctor will watch the patient closely and adjust the doses of these medicines.


The doctor, dietitian, or other health care provider can advise patients about ways to maintain a healthy diet. Patients and their families may want to read the National Cancer Institute booklet Eating Hints for Cancer Patients, which contains many useful suggestions and recipes. The "National Cancer Institute Booklets" section tells how to get this publication.

 


Followup Care


Followup care after treatment for pancreatic cancer is an important part of the overall treatment plan. Patients should not hesitate to discuss followup with their doctor. Regular checkups ensure that any changes in health are noticed. Any problem that develops can be found and treated. Checkups may include a physical exam, laboratory tests, and imaging procedures.


 

Support for People with Pancreatic Cancer


Living with a serious disease such as pancreatic cancer is not easy. Some people find they need help coping with the emotional and practical aspects of their disease. Support groups can help. In these groups, patients or their family members get together to share what they have learned about coping with their disease and the effects of treatment. Patients may want to talk with a member of their health care team about finding a support group.


People living with pancreatic cancer may worry about the future. They may worry about caring for themselves or their families, keeping their jobs, or continuing daily activities. Concerns about treatments and managing side effects, hospital stays, and medical bills are also common. Doctors, nurses, and other members of the health care team can answer questions about treatment, diet, working, or other matters. Meeting with a social worker, counselor, or member of the clergy can be helpful to those who want to talk about their feelings or discuss their concerns. Often, a social worker can suggest resources for financial aid, transportation, home care, emotional support, or other services.


Materials on coping with cancer are available from the Cancer Information Service (1-800-4-CANCER) and through other sources listed in the "National Cancer Institute Information Resources" section. The Cancer Information Service can also provide information to help patients and their families locate programs, services, and publications.


 

The Promise of Cancer Research


Laboratory scientists are studying the pancreas to learn more about it. They are studying the possible causes of pancreatic cancer and are researching new ways to detect tumors. They also are looking for new therapies that may kill cancer cells.


Doctors in clinics and hospitals are conducting many types of clinical trials. These are research studies in which people take part voluntarily. In these trials, researchers are studying ways to treat pancreatic cancer. Research already has led to advances in treatment methods, and researchers continue to search for more effective approaches to treat this disease.


Patients who join clinical trials have the first chance to benefit from new treatments that have shown promise in earlier research. They also make an important contribution to medical science by helping doctors learn more about the disease. Although clinical trials may pose some risks, researchers take very careful steps to protect their patients.


In trials with people who have pancreatic cancer, doctors are studying new drugs, new combinations of chemotherapy, and combinations of chemotherapy and radiation before and after surgery.


Biological therapy is also under investigation. Scientists are studying several cancer vaccines to help the immune system fight cancer. Other studies use monoclonal antibodies to slow or stop the growth of cancer.


Patients who are interested in joining a clinical study should talk with their doctor. They may want to read the NCI booklet Taking Part in Cancer Treatment Research Studies. It explains how clinical trials are carried out and explains their possible benefits and risks. NCI's Web site at http://www.cancer.gov on the Internet provides general information about clinical trials. It also offers detailed information about specific ongoing studies of pancreatic cancer by linking to PDQ®, NCI's cancer information database. The Cancer Information Service at 1-800-4-CANCER can answer questions about cancer clinical trials and can provide information from the PDQ database.


 

National Cancer Institute Booklets


These National Cancer Institute (NCI) booklets are available from the Cancer Information Service by calling 1-800-4-CANCER. They are also available on the NCI Publications Locator Web site, which is located at http://www.cancer.gov/publications on the Internet.


Booklets About Cancer Treatment


           Chemotherapy and You: A Guide to Self-Help During Treatment


           Eating Hints for Cancer Patients


           Pain Control: A Guide for People with Cancer and Their Families


           Radiation Therapy and You: A Guide to Self-Help During Treatment


           Taking Part in Cancer Treatment Research Studies


           La quimioterapia y usted: Una guía de autoayuda durante el tratamiento del cáncer (Chemotherapy and You: A Guide to Self-Help During Treatment for Cancer)


           El dolor relacionado con el cáncer (Understanding Cancer Pain)


           El tratamiento de radioterapia: Guía para el paciente durante el tratamiento (Radiation Therapy and You: A Guide to Self-Help During Treatment)



Booklets About Living With Cancer


           Advanced Cancer: Living Each Day


           Facing Forward: Life After Cancer Treatment


           Siga Adelante: la vida después del tratamiento del cáncer (Facing Forward Series: Life After Cancer Treatment)


           Taking Time: Support for People With Cancer and the People Who Care About Them


           When Cancer Recurs: Meeting the Challenge


 

National Cancer Institute Information Resources


You may want more information for yourself, your family, and your doctor. The NCI offers comprehensive research-based information for all.