I received the following from The Myositis Association, but it would make the perfect gift all year year round.  I hope you will pass it along to your family, friends, and business associates:

The Myositis Association:  http://myositis.org/ 

This is a fantastic information and support site that anyone that has Myositis or wants to know more about our disease must visit.  I can not tell you how much this site and the message boards there helped me when I first learned I had Dermatomyositis and it continues to do so today.  It is a site I visit several times a day.

The people on the message boards are like family. We each live with the disease and the problems it brings us each day.     A section is provided for JDM, IBM, DM/PM and General.  You can ask them ANY thing and you will get a real life answer.

You do not have to join the TMA to view their information or to particpate in their message boards, but joining the TMA is inexpensive and will provide you with even further resources as a patient. Most of the money on a full membership goes to research.  For me the highlight of joining was that I recieved accesss to a list of others with the disease in my general location.  Each area has a Keep in Touch (KIT) leader that host get togethers.  I finally wasn't all by myself with this disease!

There is so much information...too much to list here.  You just must check them out!

Partial List of Quick Facts about TMA:

Doctors That Have Treated Myositis Patients

This is a listing of Doctors by State or Country that Myositis patients have recommended. I do not claim that they are the best doctors for you or that they can make miracles happen, but fellow patients have said they are knowledgable in the treatment of Myositis.

California

Illinois

Missouri

Pennsylvania

Washington

West Virginia

The Myositis Association:  http://myositis.org/ A wealth of information and an active on-line community.  Your donation, although not a necessity, helps research for a cure for Myositis.

 RetirementLivingTV--Show On Myositis (This is a 7 1/2 minute segment--you will need a good connection to watch it.)  While you are there check out all the other information they have just on living.  It's a great site!

Jen's Space on MySpace:  http://www.myspace.com/dermatomyositos 

Jim Kilpatrick's Site   http://www.myositissupportgroup.org/

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Madlon's TV Interview on Myositis

http://www.wxii12.com/video/13635669/index.html

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Juvenile Myositis (JM)

Josie's Adventure-Read this blog as a small child and her family goes through the ups and downs of Dermatomyositis:  http://www.deebers.com/blog/josie_blog.html

Cure JM  http://www.curejm.com/

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Inflammatory and Immune Myopathies: Acquired http://www.neuro.wustl.edu/neuromuscular/antibody/infmyop.htm

DM VS PM CHART  http://moon.ouhsc.edu/kfung/jty1/NeuroHelp/ZNN0TA01.htm

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Great Blogs:

Muscular Mayhem  http://www.ktsite.blogspot.com/

Josie's Adventure  A small child struggles with Dermatomyositis http://www.deebers.com/blog/josie_blog.html

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Support Groups:

TMA Support:  https://www425.ssldomain.com/myositis/forums/forum/index.cfm?nocookies=yes&r=868&souviens=117716

Yahoo Support :  http://health.groups.yahoo.com/group/dermatomyositissupport/

Jim Kilpatricks' Support:  http://www.myositissupportgroup.org/discussion.htm

Heather's Support Group on MySpace: http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupID=105807328&MyToken=9566b46c-9a4b-4553-b92b-4d64a89d150a

PRISCILLA's Support Group on MySpace:

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupID=101632370&Mytoken=5ED11E75-AB5F-4FAB-A3DE08420D5068816235970

Ms. Angelique's Support Group on MySpace:

http://groups.myspace.com/index.cfm?fuseaction=groups.groupProfile&groupID=103048268&MyToken=52401148-8e3c-4136-9781-d47795abd7bb

Intersting Myositis Websites:

Kristin on MySpace

Zara's HomePage

Kristin Renz's Blog

Laura's Page on Parenting with Chronic Illness

The Myosistis Association

United Kingdom Myositis Support Group

If you would like to purchase a magnetic ribbon, lapel pin, or keychain to help raise research funds, contact Kristin Renz at myositisshop@aol.com

We loved them, we respected them, we miss them, and we remember them................

Lois "Faye" Robertson

Perryville, MO

Aug. 24, 1940-Dec. 9, 2006

Although she died of Lou Gehrig's disease, until near the end she had been told she had IBM.  She was an active member on the Myositis.org message boards and is remembered fondly by many.

Ann Navan

The grandest lady of all died of IBM.  She had a wonderful husband, marvelous family. They built her a waterfall and stream in the backyard so she would have that to look at. She was compassionate to a fault. Always helpful. Often funny. A darn good poet. And an enormous loss to the myositis community.

Marty (PM) died, aged 51 on June 19th 2007,at home in Trenton NJ.

A lovely,intelligent,kind discerning man.Loved and revered by all who knew him,both in person and on the "World Wide Web"....Now walking with his beloved HOBO again. xx