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Jim Sweeney



Last Updated: 12/20/2009

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Gender: Male
Status: In a Relationship
Age: 54
Sign: Aquarius

Country: UK
Signup Date: 11/21/2007

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Thursday, November 12, 2009 
I'd like to take a few moments of your time to discuss Euthanasia.

(Can the younger people keep an eye on the grown ups, please?  They might go red in the face and start blabbering, "Euthanasia! It's wrong! It's political correctness gone mad!" Pat them reassuringly on the back of their hand whilst shouting " Shut up" in their good ear)

How many more times will we see a person with some crippling disease being wheeled into the High Court where they will have to plead for the right to die with dignity?  How many more people will be forced to travel abroad to die as a stranger in a strange land?  Am I ever going to stop asking questions and get on with this blog?

It seems to me that there are two sections of the community that are opposed to Euthanasia.


Religion; specifically, as I was born into a Catholic family, Christianity 

I am a complete atheist. If anything , I stand slightly to the left of that marvelous fellow, Richard Dawkins.

I believe there is no God (It is not that I don't believe in God;  it's that I believe there is no God.  Subtle difference but very important to me and I'm the one with Progressive MS so shut up)

Religious people believe that their body belongs to God.  They believe that when He calls them from the Heavenly Gates, they have to go in for their eternal tea.  If they try and sneak in behind His back they get grounded for ever and have to go down to the fiery pits and hang out with all the really cool people.

Therefore, it makes perfect sense to me that those who believe in God are opposed to euthanasia.  In their minds it is wrong to take your own life; that decision can only be made by God.
  
Fair enough. We are all agreed that no religious person can take their own life.

But those rules don't apply to an atheist like me.

I am not tormented by the notion of an afterlife.  There is no supernatural being waiting for me beyond the grave.  There is no God preparing to cast His omnipotent eye over the book of my life. (Actually, it's more of a chunky booklet.  An Innovations magazine;  full of quite interesting stuff and a lot of old tat)

When I die, I die.  That's it. 

Other voices take a different position.  They fear that these people with the yucky illnesses might be pressured into killing themselves.  They might feel they have become a burden to their family.  Their family might feel that they have become a burden to them.   The unbearable pressure might force them to take their own lives.

In truth, these are valid concerns.  There are vulnerable people who might be bullied into taking their lives.  It is an horrible thought but I am sure that there are people who could find themselves in such a terrible position.  Of course, they must be protected.

But, in 2007 (the most recent figures that I could find on a brief Google search) over 5,000 people in the UK committed suicide.  I don't remember reading any articles asking how many of these were sick people who had been pressured by their family.

My MS has progressed to the stage where I need assistance 24 hours a day.  7.30 am. Two wonderful, gentle, shamefully underpaid carers get me out of bed.   They undress me and  hoist me into my lovely shower chair.  They push me into my specially adapted bathroom called 'Hollywood'.  ( It  has bright blue LED lights directed at a mirror ball and a sparkly floor.) They brush my teeth, wash my face, shower, shampoo and shave me.  They clean all my bits and after I have used the commode they even wipe my ears. (anag.)

Over the rest of the day these beautiful people take care of my every need including feeding me.  As bedtime approaches they hoist me from the wheelchair into the sack, switch on my big TV, lay out my medicinal weed, pour out my non-medicinal Pinot Noir, lower the lights and leave me until they return next morning and the whole cycle begins again.  

I am not complaining. I came to terms with the nature of my primary progressive Multiple Sclerosis many years ago and I know exactly where I'm headed.  There is no cure; it just grumbles on without remission (bit of a clue in the name, really.)

I live on incapacity benefit and disability living allowance and the incredible generosity of the Comedy Store Players.  They ensure that I don't have to worry about anything financial or alcoholic.  I can never thank them enough.  They are three of the sweetest people that I know.  I have my beautiful family, live in a big house, have a wide circle of fabulous friends and I'm surrounded by all the gadgets that enable me to spend my days watching DVDs, listening to my iPod and Twittering away on my Mac.

Basically, I'm a happy and contented man.  But....

There may come a day when the quality of my life has deteriorated to the point where I want to stop.   If that day ever arrives, I would love to be able to open my house to all my friends and family.  Throw an open ended party.  It would give me the opportunity to tell my friends exactly what I think of them.

I would be able to say a final goodbye to everyone I love .

Then, in my ideal world I would be hoisted onto bed and spend time with my family, pop the pill and slip quietly away.

It's not a bad little plan, is it?  


Friday, October 23, 2009 
I have Primary Progressive Multiple Sclerosis.

(There's no point trying to make a break for it; all the exits are locked.)

As a result I spend my days in one room either in bed or in my wheelchair.  There's an awful lot of TV gets watched but very little gets retained.  It goes in one eye and out the other.

Having said that, it has provided some unexpectedly addictive viewing; for example, "The Dog Whisperer".  This show stars the calm but ever assertive hundmeister, Cesar Millan. Cesar runs the dog psychology centre in downtown South LA. From this canine powerbase he tours America, rehabilitating disturbed dogs. Dogs who won't stop barking, dogs who won't stop running after cars and, my personal favourite, the dog who was afraid of stones. 

Within a matter of minutes, Cesar has these dogs eating out of his hand. Anxious dogs relax, aggressive dogs become pussycats and dogs with low self-esteem become the life and soul of the pack. I would find myself waiting for 7pm to come round and Sky3 to go on, and for 50 minutes I would lose myself in Cesar's world of calm assertion. Of living in the now and being the leader of the pack. 

It sounds like a load of old bollocks but Cesar is so positive and upbeat that I  found myself wishing I was a dog.

When I'm in the wheelchair much time is spent wandering across the Internet,  often coming to rest at twitter.com

Now, in my leggy days I might have dismissed twitter as cyber nonsense.   People with nothing better to do than tell the world what they are doing.  Why would I want to narrate my life on a daily basis to hundreds of people that I have never met?  Why would I be remotely interested in what they are doing?  Why would I give a toss about what a complete stranger thought about my latest "tweet"?

The truth is; I love twitter.com

I don't follow many people but those that I do follow give me great pleasure
 From Stephen Fry's glorious, bursting at the seams days to the occasional message from our old friend Jane Nash.

It is getting more difficult for me to type as the MS has set up base camp in my hands. My left hand is so weak and floppy that when I raise my arm it goes as limp wristed as a camp character in a 70s sitcom.

But, I'll keep going for now.  My inspiration?  The title of Richard Pryor's autobiography "I ain't dead yet, motherfucker"  

Obviously, he is dead now....but you get the idea.
Saturday, September 13, 2008 

Apologies for the delay, but my MS decided to put its foot down and show me that it meant business.


The story so far…


I was diagnosed with MS in 1990. At that point all I really suffered from was blurred vision, which gave me a charming Monet-esque view of the world. Everything gently blurred away at the edges, and everyone looked gorgeous; even Andy. It grumbled along until the year 2000, when it demanded a walking stick, as the slight limp I had acquired had developed into a full blown drunken stagger. Never a good look when you're applying for a bank loan. Finally, in 2005, it was Ironside time. Since then I've been getting a little weaker, until July 2008 when it chose to stop playing around and cut to the chase.


Basically, whilst transferring from bed to wheelchair, my back went into spasm. I don't wish to be over-dramatic, but no human being, since the beginning of time, has experienced the pain I felt that day.


So, I was rushed into hospital where I spent the next 8 days in bed.


All day in bed.


That's all day.


So all those private moments that one likes to keep between ones self and a toilet, now had to be shared with a nurse. Male or female. All men will know that it's very difficult to pee when there's a man standing next to you in the urinal, but when it is a woman encouraging you to empty your bladder…


After a week I was moved to a neurology ward where, with the aid of hoists and pulleys, I could move from the bed to the wheelchair, but still needed a collection of nurses to accompany me to the toilet.


After 5 ½ weeks I was transported home, where I now have my own hoist, a specially adapted bed, and a flotilla of carers who appear 4 times a day to hoist me out of bed and into the wheelchair, or out of the wheelchair into bed.


They also shower me.


Regular readers may remember that, in an earlier blog, I pondered the great question; To shave, or not to shave. And the answer is it really doesn't matter. When you have 2 women wash you- and they do wash all your bits- you are really not concerned about your pubic arrangements.


My new status; The 'Almost Bed-Bound But Not Quite' Man, meant that my room needed adapting to accommodate such paraphernalia as hoist, sling and mobile commode chair (don't ask!). But I still have all my goodies, like my lovely Mac laptop, iPod and speaker dock thingee, digital radio, kalaidoscopic Mathmos ambient lights, DVD player, HDD player, and- overlooking the whole room from its glorious new position on the centre of the wall at the end of my groovy new hospital bed- the 50 inch, LCD, HD flatscreen magnificent creation that is my TV.


Basically my life has changed and I'm heading towards the ugly bit of the MS. When I first got home from the hospital I felt a little down and wasn't sure whether I would be able to adapt to strange new carers coming in every day to wash and dress me, but I needn't have worried.


On that first day home, my new carer, Lucy, arrived. We did the usually slightly awkward 'getting to know you' conversation, and I described where everything was, kitchen, bathroom etc. She had a look around and then came back to ask me for some towels. She took them from the chest of drawers, and as she left the room said something about the bathroom. I asked her what she had said, and she replied


'Sorry, I was just saying that I would put your towels in your Hollywood bathroom'


I hadn't told her that the bathroom was nicknamed Hollywood.


I knew everything was going to be fine.