Alzheimer's Association, WV Chapter E-update September 2009
(http://www.kintera.org/TR.asp?a=gtKVJfPTLjIXLkK&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Hello!

We are pleased to bring you the September edition of our e-update with information on World Alzheimer's Day and our upcoming Education Conference. Visit our Community Education page (http://www.kintera.org/TR.asp?a=ehKRI9OHLeIQKaJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG) for more information on local community workshops and Lunch & Learns.

Go Purple for World Alzheimer's Day!
September 21st, 2009 is a day for all 26 million people living with Alzheimer's disease and their families, friends and caregivers to unite as one VOICE in an effort raise awareness about Alzheimer's.

Just as the number of individuals with Alzheimer's increases each year, so must our community support, education and research. Use World Alzheimer's Day as a way to engage coworkers, friends, congressional representatives or church leaders about the perils of the disease and how they can MOVE to end Alzheimer's.

Encourage your workplace to GO PURPLE (and casual) on World Alzheimer's Day! Have everyone wear an article of purple clothing, decorate your lunchroom or cafeteria in purple or serve a brain healthy lunch. Order Casual for a Cause stickers (http://www.kintera.org/TR.asp?a=gtKVJfPULjIWLkK&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG) and sell them for $5 to your co-workers and have a "Casual for the Cause" World Alzheimer's Day.

HONK to STOP Alzheimer's will be a chapter-wide event on the morning and evening of World Alzheimer's Day! You can find us on the busy streets waving our HONK to STOP Alzheimer's signs from 7:30 am to 8:30 am AND 4:30 pm to 5:30 pm! If you would like to volunteer, please contact our office at 1.800.491.2717

Visit the WV Chapter's World Alzheimer's Day page (http://www.kintera.org/TR.asp?a=gtJVLfPVIiISKiJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG) to see a complete listing of events, workshops and ideas to make the 2009 World Alzheimer's Day a memorable one!


A Portrait of Alzheimer's: Insight & Strategy for Healthcare Professionals

2009 Education Conference
November 19 & 20
Charleston Civic Center
Charleston, WV

This year we are honored to feature Ms. Jolene Brackey, author of Creating Moments of Joy, and Dr. William Thies, Vice President of Medical and Scientific Relations for the national office of the Alzheimer's Association.

Dr. Thies will be conducting a free, open to the public, seminar on the latest Alzheimer's research at 4:00 pm on November 19th. An RSVP to justin.knabb@alz.org is kindly requested by Friday, November 13th.

Register for the Conference (http://www.kintera.org/TR.asp?a=beLMLSNkH8LGJYJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG) |

View Conference Schedule (http://www.kintera.org/TR.asp?a=ehKSJ1OwEbLQIbI&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Visit our Education Conference page (http://www.kintera.org/TR.asp?a=boLMLSNlH6LFJ0J&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG) for detailed information on CEUs, accomodations, and contact information.


Stop Horsin' Around! Get Involved with Memory Walk Today!

There is still time to get on the MOVE and start or join a team for one of our Fall 2009 walks!

Memory Walk is our largest fundraising and awareness event. Thousands of Memory Walks are held across the country each year, including 11 here in West Virginia, to support the vital programs and services the Alzheimer's Association provides for families and caregivers facing Alzheimer's disease, as well as necessary research to find a cure. Please join us at an upcoming Walk near you!

Eastern Panhandle - September 19 (http://www.kintera.org/TR.asp?a=dqLQIYNwHhINK4J&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Bluefield/Princeton - September 26 (http://www.kintera.org/TR.asp?a=ehKSI1OALiIWKeJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Romney - September 26 (http://www.kintera.org/TR.asp?a=hkIYJaPMKmL3InI&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Beckley/Oak Hill - October 3 (http://www.kintera.org/TR.asp?a=jmK2JgMUIpJ1JmL&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Mid-Ohio Valley - October 3 (http://www.kintera.org/TR.asp?a=fsJUK4OEIlLVJcJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Wheeling - October 10 (http://www.kintera.org/TR.asp?a=ivL0LdMQLoK2LmI&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Huntington - October 10 (http://www.kintera.org/TR.asp?a=dgLQKYOwGjJXIcK&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

Charleston - October 31 (http://www.kintera.org/TR.asp?a=beLMLSNpH9LBJXJ&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)

The Alzheimer's Association, WV Chapter is the only voluntary health organization in West Virginia dedicated to serving individuals, families and communities facing Alzheimer's disease and other related dementias. If you or someone you love is facing Alzheimer's disease, we can help now. Please call our toll-free 24-hour Helpline at 1.800.491.2717 or visit our website at www.alz.org/wv (http://www.kintera.org/TR.asp?a=erKSJ1OBIdLLI9I&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG).

Join us on Facebook (http://www.kintera.org/TR.asp?a=huIYKaPNLgKSKjL&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)
or MySpace (http://www.kintera.org/TR.asp?a=adJKLPMlF9JFIZK&s=7dJKJTMsEhIHLRPyGqE&m=igIKLUMEIfLUG)
 

Keep reaching for the top!

Together, we're making great fundraising progress! Our goal for the 2009 Charleston Memory Walk (http://www.kintera.org/TR.asp?a=ivLWLiMYLkKYLlI&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG) is 80 teams and 600 participants. We still have a long way to go in just under two months, but with your help we can exceed these goals!

Visit our Memory Walk events page (http://www.kintera.org/TR.asp?a=adJGLUMtF8JBIVK&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG) for the latest fundraisers and activities going on for the Charleston Walk. Contact us (http://www.kintera.org/TR.asp?a=dgLMI3NFLcIIK4J&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG) if you have any events/fundraisers you would like listed on our website.


Thanks again for your support and hard work. We look forward to celebrating with you at Memory Walk!

Sincerely,

Alzheimer's Association, WV Chapter


Join us on Facebook (http://www.kintera.org/TR.asp?a=gtJSLcPSIkIYKjJ&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG)
Or MySpace (http://www.kintera.org/TR.asp?a=anKGIUMuHeLNL2I&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG)


Fundraising Tip

Expand your fundraising outside of your circle. Ask your friends to forward your fundraising requests to their friends. You'll receive donations from people you've never met!

Mission Moment

If you or a loved one has Alzheimer's, consider participating in a clinical trial. Help to further Alzheimer research -- learn more here (http://www.kintera.org/TR.asp?a=jwKYJlM3IjJWJnL&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG).

Donate (http://www.kintera.org/TR.asp?a=cpIKK0NBKcIJL3K&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG)

Log in (http://www.kintera.org/TR.asp?a=fsJQK9ONIfLQJdJ&s=fvJ0JhOYIpIXLfN4KyG&m=nwI0LdOXLsIeG) 

Go Purple at Power Park

There are still plenty of FREE tickets available for the Power baseball game!WEAR YOUR PURPLE to raise awareness about Alzheimer's disease and Memory Walk!

Go Purple at Power Park
WV Power vs. Charleston, SC Riverdogs
Sunday, July 26, 2009
5:05 PM
Appalachian Power Park
Contact Justin Knabb at justin.knabb@alz.org for your FREE tickets to the game!

BE SURE TO WEAR PURPLE!



Join us on Facebook (http://www.kintera.org/TR.asp?a=bqIOI6OJJgJPJcL&s=agLQI2MEKkKNK0PKLtG&m=ikLUJdPQKfJ3F)

or Myspace(http://www.kintera.org/TR.asp?a=etJULfPVIkITKiJ&s=agLQI2MEKkKNK0PKLtG&m=ikLUJdPQKfJ3F)


Sign up (http://www.kintera.org/TR.asp?a=diKSLcPNKmJ1IiK&s=agLQI2MEKkKNK0PKLtG&m=ikLUJdPQKfJ3F)

Donate (http://www.kintera.org/TR.asp?a=bgLOI6NGLcIFK3J&s=agLQI2MEKkKNK0PKLtG&m=ikLUJdPQKfJ3F)

Log in (http://www.kintera.org/TR.asp?a=etIUIfPSJfKMIdI&s=agLQI2MEKkKNK0PKLtG&m=ikLUJdPQKfJ3F)

Go Purple at Power Park

Join us for the West Virginia Power baseball game and WEAR YOUR PURPLE to raise awareness about Alzheimer's disease and Memory Walk!

Purple at Power Park
WV Power vs. Charleston, SC Riverdogs
Sunday, July 26, 2009
5:05 PM
Appalachian Power Park
Contact Justin Knabb at justin.knabb@alz.org for your FREE tickets to the game!

BE SURE TO WEAR PURPLE!


Sign up (http://www.kintera.org/TR.asp?a=8dJGKQNpEiKPK1L&s=agIQL2PEIkKNJ0PKItH&m=jlISJbPRJjJaE)

Donate (http://www.kintera.org/TR.asp?a=bgLMKZOBKlJWIbK&s=agIQL2PEIkKNJ0PKItH&m=jlISJbPRJjJaE)

Log in (http://www.kintera.org/TR.asp?a=etJSL8PNIoI3KlJ&s=agIQL2PEIkKNJ0PKItH&m=jlISJbPRJjJaE)
 

RSVP Today for our Memory Walk Block Party!

Remember next Wednesday, June 24, is our 2009 Memory Walk kickoff party with plenty of FREE FOOD, FUN, GAMES and DOOR PRIZES!

Memory Walk Block Party
June 24, 2009
5 PM to 7 PM
Alzheimer's Association, WV Chapter
1111 Lee Street East, Charleston

RSVP by June 19 to Justin Knabb, 1.304.343.2717 or justin.knabb@alz.org

Pick up team packets, meet other Memory Walkers and get into the Memory Walk Spirit with the WV Chapter of the Alzheimer's Association!

Sign up, donate or log in today at http://www.alz.org/memorywalk

Alzheimer's Association (http://www.alz.org/wv)
Action Alert!

what:
Tell Senator Robert Byrd to increase Alzheimer research funding.
Send your email now (http://www.alz.kintera.org/senate).

when:
By Wednesday June 17, 2009

Dear Alzheimer Advocate:

Senator Byrd is a member of the Senate Appropriations Committee who makes decisions on the amount research funding will receive.

Alzheimer research funding has declined over the last 6 years.

As a result: good science has gone unfunded, young scientists (and their new ideas) have been forced into other fields and life-saving treatments have been delayed or lost forever.

Take Action:

Email Senator Byrd. Tell him to increase Alzheimer research!

Use our Write Congress tool (http://www.alz.kintera.org/senate) to send your message.

Remember to personalize the email by adding a few words about how Alzheimer's impacts your life.

Need a direct link to this action? http://www.alz.kintera.org/senate

Don't forget:

Background
To learn more about our progress towards increasing Alzheimer research funding, see our monthly Federal Update (http://www.kintera.org/TR.asp?a=gdJOLMMgFaJHIVK&s=8oJMIWPwEiKJKUNCKrE&m=pkIWI9OUKjK5F).


Thank you!
As an advocate, your voice makes a difference.

Questions? Email: gabrielle.corey@alz.org





Mailing Address:
Alzheimer's Association West Virginia Chapter
1111 Lee Street, East
Charleston, WV 25301
US

Contact Name: Gabrielle Corey
Telephone Number: (304) 343-2717

Save the date for our Memory Walk Block Party!!!!

Mark your calendar for June 24, 2009! We'll be kicking off our 2009 Memory Walk with plenty of FREE FOOD, FUN and GAMES!

Memory Walk Block Party
June 24, 2009
5 PM to 7 PM
Alzheimer's Association, WV Chapter
1111 Lee Street East, Charleston

RSVP by June 19 to Justin Knabb, 1.304.343.2717 or justin.knabb@alz.org

Pick up team packets, meet other Memory Walkers and get into the Memory Walk Spirit with the WV Chapter of the Alzheimer's Association!


Sign up: http://www.alz.org/memorywalk

Donate: http://www.alz.org/memorywalk

Log in: http://www.alz.org/memorywalk

Alzheimer's Association (http://www.alz.org/wv)
Federal Update - May 2009
 
Issue Update

As a result of our efforts at the Public Policy Forum in March and our April action to increase support for the Ending the Medicare Disability Waiting Period Act of 2009 (S.700 / H.R.1708), 35 additional members of Congress have become co-sponsors, including WV Congressman Nick Rahall and OH Congressman Charlie Wilson! We now have 73 and counting. View the list of members who have already co-sponsored the bill at: http://alz.kintera.org/endthewaitcosponsors.

To date, Members of Congress have made the following commitments to our issues:

* 194 indicated support to end the two-year waiting period for Medicare;

* 204 indicated support for a $250 million increase in Alzheimer research funding; and

* 68 indicated support the creation of an Alzheimer’s Solutions Project Office.

* 65 members indicated support for all 3 issues!



What Can I Do Now?

Join your fellow advocates May 25-29 as we visit US House members in their District offices. The focus of this month’s visits is increasing federal Alzheimer research funding by $250 million.

Contact your chapter to join or start a visit team. (http://www.alz.org/wv/in_my_community_contact.asp)



Emerging Issue: Health Care Reform

The talk in Washington, DC is all about health care reform. Our position is that health care reform cannot be passed without improvements to care for persons with Alzheimer’s disease.

The Association is heavily involved in efforts on Capitol Hill and in national coalitions, pushing for Alzheimer-specific changes. Most recently, we submitted comments to the healthcare reform proposal outlined by the Senate Finance Committee and will continue to stay active in this debate. (http://finance.senate.gov/press/Bpress/2009press/prb042809.pdf)

We are focusing on making sure that these reforms include: care coordination services for people with Alzheimer’s disease as part of Medicare; ending the Medicare 2-year wait; and improving long term services and supports. (Care coordination is a person-centered approach that brings together medical and community care and includes: a personal needs and goals assessment; a care plan; and care managed by a trained care coordinator or interdisciplinary team.)

We will continue to update you on our health care reform efforts.

Questions? Email: gabrielle.corey@alz.org