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Arthritis Foundation


Last Updated: 11/23/2009

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City: ATLANTA
State: Georgia
Country: US

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October 20, 2009 - Tuesday 



The Power of 1 – The Voice of Many
Save the Date: 2010 Advocacy & Kids’ Summit
March 1 – 3, 2010, Washington, DC
The Advocacy & Kids' Summit is YOUR chance to tell Congress about the needs of 46 million adults and 300,000 kids with arthritis. Join fellow advocates in Washington, D.C., and learn how to advocate on Capitol Hill. Meet with your Members of Congress or their staff to educate them about the impact of arthritis. Everyone is invited to participate!

Registration for the Summit will begin the first week in November. Stay tuned for detailed instructions.

To learn more about the Arthritis Foundation’s Advocacy Priorities and past Summits just visit:
http://www.arthritis.org/advocacy-summit.php


If  you plan to go and are interested in a TweetUp let me know?

7:51 PM 
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September 14, 2009 - Monday 
Q: I have had fibromyalgia since I was 15. What is the possibility that my daughter will also have this condition? Has there been any research on how teenagers develop fibromyalgia?


A: The origin of fibromyalgia is unknown, but recent studies suggest there may be a relationship between fibromyalgia and depression and other mood disturbances. These mood disorders tend to run in families, and there is evidence of an increased frequency of depression among first-degree relatives of people with fibromyalgia. Although children and teenagers can develop fibromyalgia, it is much more common in people over the age of 20 and it predominantly affects women.

Although fibromyalgia is very common, it is difficult to predict the likelihood that any individual will develop it, even with a family history. If you have concerns about your daughter's condition, I recommend that you consult a rheumatologist.

David S. Pisetsky, MD, PhD, Rheumatologist


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4:48 PM 
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August 11, 2009 - Tuesday 
New Legislation Introduced in the Senate


Take Action!


The Arthritis Foundation is pleased that Senator Rockefeller (D-WV) recognizes the importance of access to affordable medications. He introduced on August 6, "The Affordable Access to Prescription Medications Act of 2009" (S. 1630). This legislation would cap out-of-pocket costs for medications - including arthritis drugs under Medicare Part D as well as those with private insurance. It would cap prescription drug costs at $200 out-of-pocket per monthly prescription and a total monthly out-of-pocket cap of $500 for all prescriptions. Senator Rockefeller is working to include this legislation in health care reform legislation. Please tell your Senators about this important legislation and how it would greatly benefit people with arthritis.

Health care reform continues to be a hot and controversial topic. Members of Congress want and need to hear from voters, like you, back home. The Arthritis Foundation during this past year has heard from thousands of people with arthritis who have difficulties keeping and paying for health care. The Arthritis Foundation has been working to ensure that health care reform legislation addresses:

    the barriers to purchasing health insurance due to having rheumatoid arthritis or juvenile arthritis;

    access to coverage without full-time employment;

    paying for appropriate care and medications due to rising copayments;and

    the shortage of pediatric rheumatologists, which limits access to care for kids.


The Arthritis Foundation urges you to email or call, or if possible, see your Members of Congress while they are home in the district or state. Tell them about the health care needs of people with arthritis. Neither the House or the Senate has passed a final bill on health care reform. Much work remains to be done, and there is still ample opportunity to offer input. Now is the time!

Click here to read the Arthritis Foundation's summary and full statement on health care reform


7:06 PM 
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July 21, 2009 - Tuesday 

Category: Goals, Plans, Hopes

Are you stuck in the same old rut? Are you looking for an experience of a lifetime? Here’s your chance to participate in a life changing event – Join the Arthritis Foundation’s Virtual Joints in Motion training program and run or walk a marathon or half Marathon in 2009!

Joints in Motion, the Arthritis Foundation’s athletic training program raises awareness and funds to fight arthritis, a disease that affects more than 46 million people in America alone, including 300,000 children.

Register now to raise funds for the Arthritis Foundation and receive your customized training schedule with18 weeks of online training conducted by former US Olympian Jeff Galloway.

Jamaica – Receive 4 nights hotel accommodation at an all inclusive beach resort located on the 7-mile stretch of sandy white beaches – all meals, snacks, beverages and most water sports are free of charge. Register at http://2009jimnegril.kintera.org/

Walt Disney World – Receive 3 nights hotel accommodation at Disney’s Animal Kingdom Lodge – watch the animals (giraffe, zebra, pelican and more) from your room as they roam the grounds of this African wildlife reserve resort. Perfect place for the family – adults and kids alike will enjoy! Register at http://2010jimdisney.kintera.org/

Once your fund raising goals are met, you will travel to one of the above destinations of your choice. You’ll receive:

    Free hotel accommodation
    Free marathon or half marathon registration
    Team apparel
    One Pasta Dinner
    Your personalized website
    Free fund raising guide
    And more…

Make a difference in the fight against arthritis! The money raised will fund Arthritis Foundation research, community-based programs and services and advocacy initiatives to help improve the lives of people with arthritis and related diseases.

Learn more about the Arthritis Foundation and Joints in Motion – visit www.arthritis.org. For more information contact Angelic Jno-Charles at ajno-cha@arthritis.org.



1:38 PM 
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June 25, 2009 - Thursday 
Contact the FDA Today
JA Registry Needed Now!


The Arthritis Foundation has been advocating for many years for the creation of a juvenile arthritis registry. A JA registry would improve the care children with arthritis receive. It would help pediatric rheumatologists make better decisions about the type of medications our children need and it could serve as an early warning system if there are unintended side effects or outcomes of JA therapies. The Arthritis Foundation testified last month at the Food and Drug Administration (FDA) recommending that such a registry be established:  http://www.arthritis.org/murphy.php
 
Now it is your chance to let the FDA know we want them to continue their commendable work in this area and make our dream a reality - the creation of a fully funded JA registry that would help our kids! Click here to learn more, take action and become an advocate!
 
Please personalize your letter with your individual story and feel free to include some or the entire letter which can be downloaded here.  Please submit your comments either by regular mail or email by July 14th to: 
Division of Dockets Management
(HFA-305), Food and Drug Administration
5630 Fishers Lane, rm. 1061
Rockville,  MD 20852

Or

All comments should be identified with:  Docket No. FDA-2009-N-0145

Thanks For All you Do!
7:14 PM 
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May 8, 2009 - Friday 
Arthritis Act Introduced in Senate! Take Action!

Urge Your Senators to Cosponsor Now!

On May 6, U.S. Senators Barbara Boxer (D-CA), Kit Bond (R-MO), and Ted Kennedy (D-MA) introduced the Arthritis Prevention, Control, and Cure Act of 2009 (S. 984). The bill expands efforts to prevent, treat, and care for people with arthritis through:

Enhancing prevention efforts related to arthritis;

Expanding and strengthening research programs relating to juvenile arthritis;

Establishing a juvenile arthritis population database to track our kids and monitor their treatments;

Enhancing support for physician training programs; and

Establishing a loan repayment program for pediatric rheumatologists to address the country's severe shortage of these critical health professionals.

We need your help to advocate for passage of the Arthritis Act and to address the needs of 46 million adults and 300,000 children with arthritis, the nation's most common cause of disability. Together we can fight the pain and disability of arthritis and make 2009 the year the U.S. Congress takes final action and passes this important legislation. Please contact your Members of Congress now and ask them to cosponsor H.R. 1210/S. 984. http://capwiz.com/arthritis/home/

You can read quotes from Senators Boxer and Bond in the following news release: http://www.arthritis.org/arthritis-act-senate.php


Thanks
Ken
Arthritis Foundation - National Office
3:44 PM 
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