So as most of you know I went to Denver with the help of Sophie on Monday for a genetics test to see if I had a particular illness or not that was in question. As it turns out I do not have Marfan Syndrome like we thought. I have something called Ehlers-Danlos Syndrome. Its a conective tissue disorder. It affects your joints, muscles, skin, in various ways. Joint dislocations are one of the worst parts of EDS. There is a deadly type of EDS but the Doctor doesnt think I have that one. I have to have a skin bopsy soon to see which type I have.

It took me a few days to let it sink in. I was pretty devistated at first because despite wanting to know whats wrong with me, you never are fully prepared to accept and deal with the idea that you have a particular illness.

Ehlers-Danlos is a Genetic disorder. I now set upon the task of informing all of my family that EDS is a possiblity for them at some point. Most likely not but its still a possibilty. And not knowing which side of the family I got it from, my Mom or my Dad, I have to talk to everyone which isnt going to be easy.

I worked my ass off today and got an apointment tomorrow with a pain specialist who is going to help me manage my pain.

Although I know that its not going to be easy and I'm going to have to probably have both hips replaced and other surgeries down the road I'm feeling confident that now that I know what I'm dealing with I can over come it and do the things I want to do in life.

I have a life to live.