To my very dear EDS friends throughout Maryland, DC, Virginia, elsewhere and beyond, please take a little time to look over this information on how you can help spread awareness about Ehlers-Danlos Syndrome during May EDS Awareness Month or throughout the year, and help raise some funds for the Ehlers-Danlos National Foundation:
Google a lot? – For a change, do your searches through GoodSearch.com (powered by Yahoo!) and earn some change for the EDNF with every search. Go to www.GoodSearch.com and choose: Ehlers-Danlos National Foundation – EDNF. They even have a downloadable toolbar.
Like coffee? – You’ll love: http://www.javajoesroasting.com/mastersh.nsf/WBH?OpenForm&Cat=CoffeeClub&Type=ednf&RA=ednf
Send Some Flowers - Share the Love - Everyone Deserves Flowers! – When you order flowers at http://ednf.flowerpetal.com 12% of each purchase goes to EDNF. That's $6 for a $50 purchase and $12 for $100. There are no additional fees for delivery, even same day delivery! You can save up to $10.95 compared to other on-line florists. Tell everyone about http://ednf.flowerpetal.com and order from them throughout the year.
Surf iGive Stores at www.iGive.com – Everyday shopping through iGive is quick, easy and painless, and benefits the EDNF much more than you could possibly expect. Many of your favorite stores (Lands' End, Office Depot, PETsMART, Gap, Best Buy, JCPenney, Shop NBC, Neiman Marcus, Expedia, Barnes & Noble, Vitamin Shoppe, QVC, Dell, Hallmark, Staples, Drugstore.com, Orvis and eBay to mention just a few) are accessible through iGive.com. Join iGive.com and a percentage of your purchase will be donated directly to the EDNF – without costing you a thing and without you even noticing! Make a purchase within 45 days of joining from one of 688 or so participating stores, iGive.com will donate an extra $5 FREE to your favorite worthy cause! Join to Support Ehlers-Danlos National Foundation; it's FREE, private, & easy: http://www.iGive.com/html/refer.cfm?memberid=424670&causeid=6188. Up to 26% of EACH purchase gets donated! NEED MORE INCENTIVES?: 1ST TIME BUYER DEALS worth hundreds of dollars, EXCELLENT PRICES and exclusive deals for members, and FREE SHIPPING offers from great stores! Please go to iGive.com and start shopping through them from now on. Please!
For more information about EDS check out www.ednf.org – and go shopping for tools to help spread awareness such as informational brochures to give to your doctors and your local gym, tote bags, bracelets, zebra t-shirts, etc. all to be found at the Ehlers-Danlos National Foundation store: http://shop.ednf.org/
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DC/MD/VA locals, if YOU have an idea or convenient meeting space for one or more of our groups to use this year, please contact me – everyone is welcome to participate and I certainly appreciate your ongoing support!
EDNF DC Metro Charter dcmetroednf@verizon.net – The purpose of EDNF DC Metro Group is to RAISE AWARENESS and raise funds; and to provide informational, moral and emotional support to each and every person with or without EDS in the Washington DC Metro area. Contact information: President, Sheri C., Olney MD
EDNF Baltimore Group EDNFBaltimore@comcast.net – The mission of the EDNF Baltimore Group is to support individuals who have EDS or who live with or associate with people with EDS through education, networking, and social activities. Contact information: President, Connie L., Severna Park MD
EDNF Northern Virginia Group EDNFNorthernVirginia@comcast.net – The mission of EDNF NoVA Group is to assist all people affected by EDS through networking, education and various support activities. Contact information: President, Margaret F., Alexandria VA
"Mags" aka Margaret Foote
www.yomags.com
www.ednf.org
Please check out and forward information about my personal EDNF fundraisers at:
www.firstgiving.com/yomags
www.firstgiving.com/ednfbaltdc
Ehlers-Danlos Syndrome (EDS) is a heterogeneous group of heritable connective tissue disorders. It is a progressively debilitating syndrome that can cause loose unstable joints which dislocate easily, skin fragility (tears and bruises easily), and/or organ fragility (major organs, veins and arteries can spontaneously rupture). EDS affects about 1 in every 5000 people; however it is grossly under- and/or mis-diagnosed: some 80% of people with EDS do not receive a proper diagnosis or treatment within their lifetime. We are working to change this statistic by raising awareness of this disorder within the medical community and in society at large. The EDNF is a 501(c)(3) nonprofit organization.