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Current mood:  animated Category: Life
Well it's been about a month now since all this shit going down with my Sister. My Sister is shopping around for opinions that will not have to do with opening her up for a 3rd time in less than 3 years. Fingers crossed but still in the dark over this.
I saw my neurologist last week and have been given some news on the mycenia gravis. I do have the disease and the progression is starting to show in my vision and the tremors ; when I am up to date on the meds I shake like a tree in a light wind. If I am not up to date on them I shake like Michael J Fox on a vibrating bed. I am up to about 42 pills a day ( more than both my parents combined) and have been told I will be going on IGG an IV drug where I will be going to a fusion suite ( how fucking formal) for this med about 3x a week for about a month or so then 2x a week for good. I was a little pissed I have to get a port which I am not to thrilled about , I mean how do you cordinate an outfit with that.
I could bitch and scream but hey this is not terminal and it could be much worse , the IGG is just trying to prolong the effects. So be it this is something I can not cry about because there is no cure. I have to learn about this disease and just deal with it.
I am in a retro orgasmic spasm as I am listening to the soundtrack of "The War of the Gargantuas" by Akira Ifukube the genius composer of all those Toho Monster flicks of the late 50's to the mid 70's. If you have never seen this film and are a fan of kaiju this is a must , Russ Tamblyn and Kumi Mizuno ( the woman I wanted to marry as a child .....yes MARRY ). This film has it all from men in brown and green rubber suits to a giant octopus and singing hikers and to top it off a swell little musical number " Feel in My Heart ". RENT IT ! Smoke some salvia and enjoy!
This summer a certain redheaded vamp turned me onto a ceratin fetish site and I am hooked. I must say though the lingo and seriousness of this has me a little intimidated. Pansexual , Polyamourus and so on. I love kink and fetish but godamn I feel WAY WAY out of my league. I love to have fun with it....I wore a pair of chaps,harness , motorcyle jacket and a slip on masque of Queen Elizabeth II and a sash that read PHILLY LEATHER QUEEN. Let's just say everyone LOVED the costume and this rock hard ass , but the leathermen of Philly let my boss have it. I was working the door at the time and the employees of the BIKE STOP LOVED IT.
I am a little miffed at how to act on this site and let's just say some fetishes I blush at and want to flush my eyes out at the thought.
I am a goodlooking guy and to say the ratio of good looks to .........well let's just say the last time I saw some of these men they where chasing Karen Black around the kitchen with a butcher knife or keeping away the ring from the golem. But Sir Andy is one godamn hot MOTHERFUCKER.
I feel as if I just fell from the sky and landed on Big Daddy on this site. You have to know everything as far as terminology and etiquette for the scene because they just will not talk to you if you don't know shit. I mean getting attitude from some Radio Shack stooley HELL NO.
I still don't know how my port will work with a harness and will it be a problem when in a sling. I mean these are answers I need to know. I would love to know if POLO made a hot harness. But I still worry about that dam port. I also want to know what the fuck is urethral fucking and
urethral sounds and what the fuck is a Wartenberg Pinwheel. See what I mean it makes you think you just got all the way to the 12th grade and you realise that you forgot everything you learned before.
I am not knocking these people but it feels like you have to climb Himalayan mountains , cross that rickety old rope bridge , scale the rocks and you come to the temple and realise what the fuck am I doing this for.
A special shout out to Trey and AA John and Fra and wish you all the best !
5:27 PM
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