Hello everyone,

 

      Today is a very special day for me. As many of you know my son Corbin was born on this day in 2007. He was born with a chromosomal abnormality called Trisomy 13. Although this is a rare disorder, many children are born around the world with Trisomy 13 and other related disorders every year. This disorder and others like it are labeled as 'incompatible with life' or 'failure to thrive' conditions. Although this statement is often true, many children do survive and face several challenges everyday. These children and their families go through struggles on a daily basis that are sometimes inconceivable. These families receive support from several non-profit organizations that operate from fundraisers and donations.

 

      Unfortunately, my son was not one of the survivors of Trisomy 13, however, he did spend 1 hour and 10 minutes on this earth. Please feel free to read Corbin's story http://www.livingwithtrisomy13.org/MemoriesofCorbin.htm. In honor of his 2nd birthday I have donated $25 to several organizations that were pillars of support for me and my family during my difficult pregnancy as well as after. I know without a doubt that my journey would have been a thousand times more difficult without these wonderful organizations' assistance.

 

      As a gift to Corbin on his birthday that will benefit other children around the world, I ask that you look inside your heart and also donate to these organizations. You don't have to donate much because even the smallest donation helps. Keep in mind that each donation is also tax deductible. You can donate to only one or you can donate to many, but I do ask that you at least take the time to see what these amazing organizations have to offer to families that are facing the most difficult time in their lives.

 

      Thank you so much for taking the time to read through this information and share in part of this journey. If you have any questions or comments please do not hesitate to contact me.

 

Sincerely,

Robin Martin

 

Here is a brief list of organizations:

More organizations and foundations can be found at http://www.livingwithtrisomy13.org/trisomy-13-support.htm

 

Support Organization for Trisomy 18, 13, and Related Disorders (SOFT) is a nonprofit volunteer organization offering support for parents who have had or are expecting a child with a chromosome disorder (especially Trisomy 18, and Trisomy 13), and education to families and professionals interested in the care of these children.
http://www.trisomy.org/index.php

 

"Our passionate mission strives to raise awareness for trisomy through the racing of endurance events across the globe and encouraging others to do the same for this most worthy cause. A chromosomal disorder is not a death sentence but a rewarding challenge to embrace compassion, love, and hope for a unique little life."

 

"OUR MISSION
The mission of Hope For Trisomy 13 and 18 is to fund research for Trisomy 13 & 18 and related chromosome disorders, develop programs that educate parents of children with Trisomy about options available to their child and teach them how to advocate for their child to receive all available treatment, and to create materials, literature, workshops, seminars, and conferences to educate the medical health professionals, the parents, and the public about Trisomy 13 and 18, so they have accurate and current information and resources available to them."
http://www.hopefortrisomy13and18.org/

 

Noah’s Never Ending Rainbow is focusing its efforts on (3) three major objectives:

1. Raise funds to support the operation of Noah’s Never Ending Rainbow, provide funding for research and education of Trisomy and assist individual families who have children with Trisomy and related chromosome disorders....2. Develop programs that educate medical health professionals, parents of children with Trisomy and the general public.  These educational programs will be provided at no charge.  As a result of current and future research, Noah’s Never Ending Rainbow intends to create materials, literature and workshops/seminars/conferences to educate the medical health professionals, and parents, so they have accurate and current information about Trisomy....3. Support the research of Trisomy and related chromosome disorders.