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Epidermolysis



Last Updated: 10/19/2008

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Gender: Female
Status: Single
Age: 30
Sign: Scorpio

Country: US
Signup Date: 7/21/2007
Wednesday, October 24, 2007 
October 24, 2007
Today, we checked out Gangway 1 and 2 at Battery Park, where the Kick-off Rally will take place tomorrow morning. We also stopped by DebRA of America's office to pick up our team T-shirts, the give-away T-shirts, banners and magnets. Gosh, this town is seriously overpopulated - it's no wonder most people live away from downtown! But at the same time, this place has a pulse that is absolutely tangible. We have shared about EB and this event with whoever we can - taxi drivers, waitresses, hotel staff - you just never know who might be someone who makes a difference, right?

Hollye and Missy arrived via Penn Station. Now, our group is complete, as Angi is unable to come due to work demands. We expected that might be a reality, but hoped she would be able to work around it - however, we'll be glad to see her, and so many others at Battery Park in the morning! Madeline Weiner arrived, and we visited with her and everyone joined her for supper. We always enjoy Madeline's company! Our group will post photos as soon as we get a moment to load them onto the laptop, so that YOU can share this journey inasmuch as possible.

I am so sorry that we can't be everywhere this time around; I've heard that some folks are wishing we could have come through their town. I am sure you understand, with only one week of time and so many miles to travel, we had to do what we could where we could. Maybe next year! In the interim, there is much that you can do in our absence. Requesting a local proclamation from your mayor, for instance, would be a really good thing - especially if he does a press release, or posts the proclamation on their website.

Until tomorrow night,
Gena