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BREATHE 4 TOMORROW FOUNDATION



Last Updated: 11/21/2009

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Gender: Female
Status: Single
Age: 32
Sign: Cancer

City: OLYMPIA
State: Washington
Country: US
Signup Date: 11/6/2007

Who Gives Kudos:

FREAK ON A .. (2)
♥tRI.. (1)
Wednesday, January 14, 2009 

Current mood:  thankful
I don't know where to start this
So I guess I'll use the start
The part where you had a sick baby
I know it broke your heart...

All the medications
You had to make me take
The clapping and the enzymes
The strength you sometimes faked...

Through my teenage years
I know I was a pain
Thank you for putting up with me
Though driving you insane...

Every time you'd hear me cough
I know it would stop your heart
When I'd get an infection
It must have torn you apart...

Now that I'm a mother too
I am always looking back
I can't imagine what you'd go through
Listening to me hack...

Thank you for teaching me
That CF was not an excuse
And making me take my pills
When I tried to refuse...

You are my CF momma
No words can explain
The strength you possess inside
That gets you through the pain...

That strength you had to get up
In the middle of the night
To bring me a glass of water
And be there by my side...

To teach me to love others
As much as I love myself
And sometimes you taught me
To put my pride up on the shelf...

I know sometimes you blame yourself
For that gosh darned faulty gene
I want to know that I wouldn't
Change it for anything...

That gene made me who I am who I am today
A strong amazing girl
I wouldn't change one thing
About my CF world...

I have met terrific people
I help doing an amazing thing
All because of that one
Gosh darned faulty gene!!!

I wrote this for my mom... I stop all the time and think how amazing she is and about everything she (and all of you)must go through and I want you all to know THANK YOU!!! from the bottome of my heart, as a CFer, thank you...
xoxo
Sarah Jean


-------------------------
Breathe 4 Tomorrow Foundation "making lives of those living with Cystic Fibrosis easier one breath at a time..." kicking CF's butt for 32 years!!!
10:51 PM
 
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FREAK ON A LEASH

 
i just wanted to say thank u...i am a mom of a cf kid...she is currently in the hospital now for lung problems...i thank u because of this poem...makes me feel like there is someone that recognizes that the familes are affected as well as the patients..thank you thank you thank you...
 
Posted by FREAK ON A LEASH on Thursday, January 15, 2009 - 12:19 PM
[Reply to this] 
BREATHE 4 TOMORROW FOUNDATION

 
I honestly think sometimes it is harder on the people that love us than it is on us... we don't know anything else but having CF... I imagine the guilt coming from a mom and dad (even still different for a mom, becasue she is a woman)when it comes to the giving the gene that made us sick... I can't imagine... I have such a different perspective on things now that I have a little one... When he is sick with just a cold and I can't make it better, I hate it...
SO thank YOU from the bottom of my whole heart... for being a CF mom!!!
xoxo
Sarah
and if you haven't donated your one dollar, please go to www. powerofoneperson. com and donate!!!

https://www. paypal. com/cgi-bin/webscr?cmd=_s-xclick&hosted_button_id=2325541
 
Posted by BREATHE 4 TOMORROW FOUNDATION on Thursday, January 15, 2009 - 3:58 PM
[Reply to this] 
Mercadize & Andrew Paver Help us both fight CF
Mercadize Andrew Paver

 
the tears fell while i read this. my lil girl is only a year.
it gets so hard some times we have good days and bad i know it wont get easier but it will get harder me and my family thank you so much for sharing this to all cf people i wish all CFers the best
 
Posted by Mercadize & Andrew Paver Help us both fight CF on Wednesday, January 21, 2009 - 11:16 PM
[Reply to this] 
Ƹ̵̡Ӝ̵̨̄Ʒ Megan Ƹ̵̡Ӝ̵̨̄Ʒ
Megan Gorham

 
Thank you very much! It helps us moms get through the rough times to hear things like this..! Hope your doing well!! thanks again!!
 
Posted by Ƹ̵̡Ӝ̵̨̄Ʒ Megan Ƹ̵̡Ӝ̵̨̄Ʒ on Thursday, January 29, 2009 - 7:35 AM
[Reply to this] 
Jenni

 
awww Sarah!!! I have read this a dozen times over and every time I do I tear up a little!! It is so hard watching your child go through the things you guys do, and at the same time, really..., its all worth it!! No matter how hard things get, no matter what the future holds, as a momma, I say bring it!! Meeting you, and all of the other Cfers I have, gives me so much hope for my son and what the future may hold.
I heart you chica and you know it!!!!!
 
Posted by Jenni on Thursday, April 02, 2009 - 8:34 PM
[Reply to this] 
BREATHE 4 TOMORROW FOUNDATION

 
You are so rad Jenni and you just made my night... and BOY did it need it!!!
 
Posted by BREATHE 4 TOMORROW FOUNDATION on Friday, April 03, 2009 - 3:44 AM
[Reply to this] 
Jenni

 
awww Sarah!!! I have read this a dozen times over and every time I do I tear up a little!! It is so hard watching your child go through the things you guys do, and at the same time, really..., its all worth it!! No matter how hard things get, no matter what the future holds, as a momma, I say bring it!! Meeting you, and all of the other Cfers I have, gives me so much hope for my son and what the future may hold.
I heart you chica and you know it!!!!!
 
Posted by Jenni on Thursday, April 02, 2009 - 8:34 PM
[Reply to this] 
Jenni

 
k so sry didnt mean to post that 500 times maybe you can delete it down to 1?!?!? lol
 
Posted by Jenni on Thursday, April 02, 2009 - 8:35 PM
[Reply to this] 
ROWAN
Rowan Rowan

 
That's heartbreaking but also beautiful but don't apologise you couldn't help it no one can but i mite be a healthy kid myself but i can tell that your parents anyones really would do anything for you or there child stay posotive
 
Posted by ROWAN on Monday, April 06, 2009 - 5:29 AM
[Reply to this] 
♥tRISh&jOSh♥

 
WOW! How special is that!? I can hardly type right now! XOXO
 
 
Posted by ♥tRISh&jOSh♥ on Friday, May 01, 2009 - 4:05 AM
[Reply to this] 
Jessica

 
My two brothers have CF and this poem made me cry. i cant even imagine how my mom feels day to day.

 
Posted by Jessica on Wednesday, August 26, 2009 - 5:17 PM
[Reply to this] 
Kathy Brooks
Kathleen Brooks

 
For years before the internet, I got no understanding of what it feals like to have a child with CF. All I got was blamed. Sometimes I still do. Like I did something to cause this. Then there are the times when I have to fight the predators off my beautiful daughter: men, drug dealers, identity theives. It amazes me how many people there are that will prey on a sick person.
 
Posted by Kathy Brooks on Wednesday, September 23, 2009 - 9:51 PM
[Reply to this]