AUGUST 10, 2009 DAY -8
9:30 am Sign concents and went over treatment plans.
12:45PM CONCENT AMENDED TO ADD MAY NOT PLACE CENTRAL LINE IN GROIND
1:00 pm Placement of Hickman double luiman (always hangs out of chest and can not get wet. caps must be changed twce a week and dressing must be chnged once a week. can not take normal boths or get in water), so now my son has a port (stays under skin and can be accessed when needed and then deaccessed so that he can swim and take baths. When not accessed it is not noticable.) and a hickman in one on each side of his chest.
3:15pm X-ray to check for placement to make sure that the end of the hickman that is inside of the body is not too far in the vien aka too much of the line is in the heart.
5:35 pm Confirmed that line was in too deep.
6:00 pm Signed concents for proceedure to pull the line out a little (nothing big).
6:05 pm Received call from surgen that did proceedure this morning to explain the procedure planned for tomorrow.
6:15 Signed ANES concent and found out they shoved a tube down my son's throat the first time and that is why he is hoarse and coughing (my son is not complaining of pain from this so I let it go that I was not asked or told and it wasn't included in the orig concent forms. My son has reactive airway the usage of the tube in the airway is restricted to use only when actually needed because the use of my actually make him have asthma attacks hours after the procedure is over.)
4 pm- 10 pm Maleek played with his papa and bubby, then watched the start of the Teen Choice Awards, till they left to go back home.
10 pm-11 pm Maleek has been coloring and watching the end of the teen choice awards.
TREATMENT PLAN
Starting Monday DAY - 8
Placement and then admit for BMT prepTuesday DAY -7
7am and 1pm Full body Radiation (aka TBI) He gets it twice daily for 4 days.
Some time after that he will get his line plulled out a little.
Wednesday DAY -6 9am-3pm TBI
Thursday DAY -56am-12am TBI
Friday DAY -4
6am-12am TBI
Saturday DAY -3
Cytoxan IV ( chemo) once a day for two days.
ATG IV once a day
Starts Cyclosporine (anti g V h meds)
Sunday DAY -2
Cytoxan IV ( chemo) once a day
ATG IV once a day
Monday DAY -1
ATG IV once a day
R E S T
DAY 0 STEM CELL INFUSION
(BONE MARROW TRANSPLANT!)
Maleek is doing fine. Not in pain and completely content laying on me watching Family Man. Can't believe I haven't had to make him cover his eyes yet. He is doing great. Keep praying!
LET IT GO AND LET GOD DEAL WITH IT!
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Smile
By Vitamin C
Release date: 1999-06-29 |
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