I was thinking how 2/22/09 was my Alive Day, my 15th anniversary as a
cancer survivor. Man, a ton has changed in my life since 2/22/94. After
a rough 3 months of chemo, the doctors told me that as long as I was
capable of giving myself shots, I was free to go home. I went home and
took the next semester off. I spent the summer hanging out with
friends, getting sick since my immune system was shot and trying my
damndest to live a normal life and avoid cancer talk. You see, I was 18
years old and was still looking to be accepted by my peers, I still
felt that I had a lot to prove. What? No clue, like I said, I was 18.

After
taking the summer off and the next semester I returned to school. Now,
the last thing a 19 year old wants to talk about is cancer. I resumed a
"normal" college life and rarely spoke about my cancer diagnosis. I
graduated in 1998, a year later than I had planned, but cancer happens.
After college, I still rarely spoke about my cancer. The National
Institutes of Health where I was treated asked me to talk to the
children that were battling cancer. I was scared to death and only did
it once. Why you may ask? I felt guilty. I know it sounds crazy, but I
really felt guilty that I had beaten cancer and here these kids were
battling the same thing that I went through and there were no
guarantees they would survive. As odd as it sounds, I felt like I
should be the one sick and they should be cancer free.

A few
years after graduation, I got a double whammy. My aunt, who had already
beaten Lung cancer was diagnosed with Leukemia. Bad enough, I was
visiting some friends in Richmond and we were heading to a bar. My
buddy was having some serious issues with his eye, it was closing and
he could not open it on his own. I told him that he should get it
checked out, just based on what I had been through. He did...and he was
diagnosed with Non-Hodgkin's Lymphoma. The crazy thing about it is that Ryan went
to High School with me. We had a graduating class of 23. What are the
odds that TWO of those 23 would be diagnosed with cancer? I told myself
that I would be there for Aunt Joan and Ryan during their treatments.
To a certain extent I was. I visited Ryan a few times and talked to him
on the phone during treatment, but it was really difficult for me.
Again, that lingering feeling of guilt.

I wanted nothing more
than for Ryan to be healthy and to beat this damn disease, but I really
didn't know what to say sometimes. Shit, I had already beat the
disease, what am I supposed to say? I felt guilty once again. Clearly,
I was dealing with my own survivorship issues while Ryan was going
through treatment. Sadly Ryan lost his battle with cancer. Ryan changed
my life forever. His death hit me really hard, I remember the funeral
like it was yesterday. He was surrounded by friends and family and
still I felt like I had somehow let him down. Of course I realize now
that I did everything I could to talk to him and support him but it
felt so different back then. I remember at the "Irish Wake" I said
something to my friends that I was going to do something in his memory.
I never really knew that his passing would change my life forever.

Shortly
after his passing, I did a century bike ride for the Leukemia and
Lymphoma Society's Team in Training Program. I did it in memory of Ryan
and in honor of Aunt Joan who was still battling cancer. I will never
forget this moment...coming down the final hill and seeing the finish
line, I had to pull over to the side of the road because I was overcome
with tears. This was my epiphany moment. They were both tears of
sadness and joy. I was sad that Ryan had lost his battle and that my
Aunt was fighting hers, but happy that I realized at that point that it
was OK to be a survivor and that I shouldn't feel any guilt. That was
June of 2002.

Sadly, my aunt lost her battle in early 2004, but
her passing just reinforced what I figured out with Ryan. Since 2002, I
have done everything in my power to make up for lost time. I want to
talk to everyone diagnosed with cancer and help in anyway possible. I
want to raise money for cancer research so that other people don't lose
loved ones like I have. I want to lobby our government so that they
make cancer a national priority. I want everyone to have hope and know
that cancer is no longer a death sentence, people are not only beating
the disease, but thriving after cancer.

This brings me to the
title of the blog. There is no handbook for life after cancer. I have
learned this the hard way. I had no direction in my life after my
diagnosis. There was no Lance Armstrong back then. Cancer still had
that negative connotation and stigma attached. Thankfully with people
like Lance and my good friend Sean Swarner, the stigmas are not as bad.
Are they there? Of course they are, but sadly cancer has become so
prevalent with 1 in 2 men and 1 in 3 women being diagnosed in their
lifetime that we have so many more resources at hand. With that being
said, I wanted to post some links below for some amazing non-profits
out there. If the majority of these had been around when I was
diagnosed, who knows how that would have changed my life. The good news
is that they are here now, and amazing as always. Thanks for taking the
time to read.

LiveSTRONG, Be Well, and Keep Climbing!

Joe Schneider


www.imermanangels.org
www.planetcancer.org
www.cancerclimber.org
www.livestrong.org
www.lls.org
www.imtooyoungforthis.org
www.ulmanfund.org
www.onestepcamp.org
www.cancer.gov