You
know that I always tell you how it is, and I never sugarcoat the truth.
I wish I had some better news for you but I don't.
Anyway, sad
truth is.. IF gamma knife radiation did not work- REgina has max about
10 days. Brain stem tumors are not FUN and EASY tumors to treat or cut.
And they take you down FAST.
We went to CHLA today to consult
Dr. Dhall. We have not many options.. JUSt some, to MAYBE keep regina
here little longer. . There are 2 things to do now- NOTHING, or Hit her
with pretty serious chemo. NOTHING IS STUPID. Sorry. I understand that
life quality is important. But we just had surgery, and gamma and to do
nothing is just S T U P I D.
Other way is... Cisplatin, vincristine
and lomustine ( CCNU). side effect for this chemo is low blood counts
and possible infections which means more hospital days... It took me
while to convince my DH to go THIS way. He was against this chemo.
Originally we were told to start different kind of chemo, but that
chemo is WAY to soon after surgery. Maybe, if in 6 weeks Regina is
still here, we can try that other chemo. Keep your fingeres crossed.
NOW.
ON monday I am going to take Regina to CHildrens hospital of Los
Angeles. We will be admitted maximus of 24 hours. After that we will go
home, and visit CHLA occasionally for other chemo drugs. Home healtcare
nurse will come to our house and draw Reginas labs. And if her labs
drop, then we have to go to CHLA for some blood or platelets.
Right now there is no right way . I hope that things tak better turn soon....
THANK
YOU FOR YOUR SUPPORT GUYS:) YOU MEAN A WORLD TO US :) Myself I am doing
best I can. It's not easy but what else can I do ???