We got a good report on the blood work today. Red blood cells in the normal range and platelets are 101,000. All her vitals were good. Her heart rate was up a little which indicates that she is a little dehydrated so we will spend the weekend trying to correct that. We can't even consider going back to Houston for treatment if we can't get her drinking more.
We dropped the May MRI off to Dr. Uy so hopefully we will hear from them the first part of next week. I also spoke to a nurse at Burzynski's office yesterday. Our doctor there is looking at how we can change the treatment to make it work for her. Now that I am officially on leave from work we could stay in Houston longer which would mean that we could build her dosage up slower and hopefully her body would be able to tolerate the sodium better.
That's all the news. She is in good spirits but extremely tired. We both went to sleep at 2:00 Friday afternoon and didn't wake up until 6:45. We got up and ate and went right back to sleep. (which explains why I'm up at 1:45 posting a blog)
Have a great weekend.
Much love,
Debby